Hi Echoes from Long Ago,

Have your feet ever been checked for Plantar Fasciitis? PF feels like your feet are broken when standing and walking and it is awful pain - altho' you certainly do sound like you have had actual broken bone issues in your feet from time to time so you would know what that feels like!!!

I have had PF for years and if I didn't know that it was well controlled at the moment, I could swear that is what I am feeling right now as it is very similar.

Cyclelops - some of the bone pain I have been feeling since the onset of PN, especially during the night, seems to be in the long bones of the arms and legs. I even build dreams around the pain when it is troublesome - dreaming that I've just dug a great big hole and it has taken me hours or that I've run up a mountain - when in reality all I'm doing is sleeping, albeit very lightly.

This is just one type of pain I am feeling - so it's all very confusing!

Echoes, I agree with you. The neuropathy bone pain hurts more than the real broken bones. It is deep and unrelievable. I started on neurontin again...(last time it made me a witch) however, my dysautonmia is pretty much dictating what I can and can not take, versus, worrying about my personality. I don't like the way I feel on neurontin, but, it helps pain, for now anyway....until I get used to it too.

Hi Megan, I had plantar fasciitis a few years ago in both feet at once. woke up one morning and couldnt put my feet on the ground at all. that was a different type of pain, that never felt like a broken bone feeling to me, more a sharp type pain, though also extremely painful. I would put my feet down slowly and wait, then hobble around holding onto the walls and furniture. After a few days i was going down a set of three stairs to the outside and between the second and third step the plantar fasciitis pain left completely in my left foot. The pain in the right persisted until i had a cortisone shot in the arch of my foot and that was it. It hasnt come back since. weird. This other pain is there day in day out, worse when i actually have walked or stood still for more than 20 minutes the day before. Nothing touches it.

I've had the "it feels like my feet are broken" pain too...
I once broke my bone behind my little toe so I know what it feels like, and this is like that, except it isn't constant... sometimes it is there, sometimes not... sometimes it shoots though you, and sometimes it happens when you stand up then it suddenly dissapears....
The Doc's are not helpful about that this is... they just write it off as another weird sensation caused by the neuropathy. (They think mine is auto-immune, but can't give me steroids even though when I was on massive IV dose steroids for my Optic Neuritis my feet greatly improved, as I have the tendency for High Blood sugar.)

I wondered what that was.....Every now and then, I get that feeling in the joint of a certain toe, or the ball of one of the feet. It comes and goes. I just thought it was from wearing a tight shoe. Hmmmmm.....Food for thought. But, honest to God, staying on the Lyrica...consistantly has been the most consistant "good" feeling I've had in 4 years. It's amazing how you can accept less than great, when you have had it so bad, you can't wear shoes. I can now wear shows, tight socks...it's great!

"......I can now wear shows, tight socks...it's great!"
The last show I wore was a costume @ Halloween!

I can't wear tight socks, tho. I wear the white cotton ones
for diabetics (I'm not) on a daily basis.
From the FootSmart catalog.
If the socks are too tight, i feel as if my feet are being squeezed in a sausage maker.

Precisely. There's unbearable pain and then there's the I-can-handle-this pain. When you've been unable to sleep for many nights because of PN and RLS to suddenly be able to fall asleep and stay asleep makes any other times of pain much more tolerable.

I have the bone pain as well. The level varies. There's no pattern to it nor to where I'll feel it other than the ball of my left foot. That's one constant. I also get this feeling of walking on balls maybe? When I put my foot on the floor it's like there's something under my foot. Or it's a feeling of having the bone swollen underneath. It's very difficult to describe.

Tramadol and when I need it Mirapex. Those are my staples for pain and symptom relief. I take supplements but have gaps where I can't always afford to take what I need. I do make sure to take the B-12 and B complex along with extra Folic Acid and my fish oil and Vit's C, D and E.