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Old 12-06-2008, 08:48 AM #1
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I too, have alcoholic neuropathy.
Good work on being sober for as long as you have.
I've never joined AA, went cold turkey and stayed off 100% for 5 years.
Now I take a drink occasionally, but have found that I suffer for it.
The PN flares up-so PN & alcohol are a bad mix, if you want to recuperate.
Supplements are very important, as the alcohol has depleted your normal levels, drastically.
B12-methylcobalamin, (not cyanocobalamin) sublingual- is effective at 1000-5000 mcg/day. Vit C, folates (folic acid), ALA (RLA), CoQ10, Omega 3,6,9 Fish Oil, and a few others you'll hear spoken of, on this forum.
Lots of sleep-at least 6-8 hrs a nite.
And meds. That will be a search for the right combination to best serve your needs. Many here are taking Neurontin or Lyrica along with a pain killer, like Ultram.
You and your neurologist will have to do trial & error until you find your 'cocktail'.
It will take a long time to see results with supplements -months or years.
The meds should help in the short haul.
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Old 12-06-2008, 09:47 AM #2
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yes, congrats....one.day.at.a.time......include benfotiamine in your supplement list.....and get that second opinion......NOW!
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Old 12-06-2008, 04:42 PM #3
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Quote:
Originally Posted by pabb View Post
yes, congrats....one.day.at.a.time......include benfotiamine in your supplement list.....and get that second opinion......NOW!
I'm newly diagnosed with small fibre neuropathy caused by alcohol. I cut right back a long while ago, but now realise I need to stop drinking altogether.

Although the stickies are very helpful I'm not sure what to add to my current methyl B12, B50, vite, vit D, fish oil.

Benfotiamine seems to be worth considering but how much should one take as rough guideline ?

And while I can understand the potential benefits of ALA, acetyl l carnitine and think I should start taking these I'm not sure whether if its worth taking CQ 10 as well - can anyone enlighten me about its potential benefits of this ?

Its a bit difficult knowing where to spend your money, you can't put a value on health but these supplements aren't cheap !
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Old 12-06-2008, 04:46 PM #4
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keep your brain together! Post more and I can send you PM's w/lots of good info.
IN the meantime? Just remember that it's not the alcohol per-se that is going to ease your pain? Just the opposite.
Healing nerves takes a very long time... Sometimes if damage isn't too bad some of it comes back in several months...other times it can truly take years!
I've an immune related neuropathy which I've had for five years...At times I can see and 'feel' improvements, other times not. Still others some set-backs. This is what life is about tho.
ANYTHING that can kill nerves I avoid. Anything that can help them I embrace.
Look into the advice others have given you and pick and choose what you feel you need. If it were me tho...I'd still get a separate opinion on that shoulder tho? Some PT judiciously applied could do wonders! I know that I would NOT be walking were it not for PT! Make up your own mind, read learn and ask questions. Do not be shy or afraid that anything is a silly question. No such thing as a silly question here! Hang in there and be smart! - j
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Old 12-06-2008, 05:02 PM #5
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Quote:
Originally Posted by nide44 View Post
I too, have alcoholic neuropathy.
Good work on being sober for as long as you have.
I've never joined AA, went cold turkey and stayed off 100% for 5 years.
Now I take a drink occasionally, but have found that I suffer for it.
The PN flares up-so PN & alcohol are a bad mix, if you want to recuperate.
Supplements are very important, as the alcohol has depleted your normal levels, drastically.
B12-methylcobalamin, (not cyanocobalamin) sublingual- is effective at 1000-5000 mcg/day. Vit C, folates (folic acid), ALA (RLA), CoQ10, Omega 3,6,9 Fish Oil, and a few others you'll hear spoken of, on this forum.
Lots of sleep-at least 6-8 hrs a nite.
And meds. That will be a search for the right combination to best serve your needs. Many here are taking Neurontin or Lyrica along with a pain killer, like Ultram.
You and your neurologist will have to do trial & error until you find your 'cocktail'.
It will take a long time to see results with supplements -months or years.
The meds should help in the short haul.
All people with alcohol induced PN should try Thiamine in high doses for a couple of months. Alcohol is metabolised by a dehydrogenase system that uses thiamine as a cofactor.
Thiamine deficiency is common in alcoholics and takes a long time to heal. Often doctors give B-complex to recovering patients as well.

Benfotiamine is a better version, less commonly known, and recently lowered in price. If you Google it you will find alot of information on it.
For thiamine B1 (commonly found in any drugstore and very inexpensive) you need at least 300mg a day in divided doses.

For benfotiamine (usually purchased online at better outlets like www.iherb.com ) 300mg a day to start, and when improvement sets in, may reduce to 150mg a day.

The other things Bob mentioned are good too, but don't forget that Thiamine is #1 for alcohol related PNs.

Fish oil, and B12/folate/B6 are needed to heal nerves as well.
That shoulder injury qualifies for those.
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