Yes,
I've been eating oatmeal for about 4 days. Not much else in the way of gluten unless you count the cream of celery soup in my chicken soup. I struggle with swallowing bread, rolls or anything of that kind because of the dry mouth issue.

That one hand is the only thing different. And it seems fine today. It must have just been the way I slept.

Billye

Hi Billye:

I had two emgs for carpal tunnel. The first, a long long time ago and the technicial looks at the screen and says "beautiful, beautiful", and I said "Oh, I'm good?" and she looks at me and goes, "Oh, no, you have very bad carpal tunnel, but the image on the screen is beautiful, beautiful"

They gave me a pair of splints to wear to bed.

I think I wore them for a week.

Forget it. I'm too stubborn, just like I don't wear my sleep apnea mask that the sleep apnea place gave me 5 years ago.

I got tired of looking like the creature from the black lagoon.

I am so happy your got feeling back.

good luck hon.
Melody

Hi Billye,
Yes, I get this occasionally. My whole arm and hand go numb. I have had days where the feeling doesn't come back until the evening but hasn't gone past that amount of time.
I'm glad the feeling came back for you as I know how scary it is.
Take care,
Linda

Well, this is a relief to hear! I cannot imagine what must have caused that, but I hope it is gone for good and that you don't have to experience anything like that again...

Did this just go away all at once?

Cathie

Hi Cathie,
Yes it started overnight, and was that way all day until I went to sleep that night, then was gone the next morning. Scary.

Do any of you have bodywide muscle soreness? I'm up right now 4:09 a.m. because my left arm is aching. It's sore too. I am having this problem all over my body, anywhere I rub something I find soreness. I mentioned this to my doctor and he pooh-poohed it and said well you are getting old and people have osteoarthritis. It's nothing. But this started all at once, it hasn't been a gradual thing. I started having deep tissue massages like Liza Jane and everywhere the massage therapist rubs is sore, even the attachment points.

Billye

I've just read this thread from it's start to the last by Silverlady...Billye. Am I missing something? For 20 years I have had constant numbness from my lower shoulders to fingertips and from upper thighs to toes with the worst being in my legs/feet from the lower calves down.

Am I to understand that most of you have numbness and the other PN symptoms like tingling, pins & needles, burning, etc., which comes and goes? That there are periods of time when you have no numbness or other symptoms at all? If this is true I find this amazing because my numbness and other symptoms are constant and it's always been constant...the same as my pain is constant and the most severe pain is from my calves down. All the pn symptoms in my extremities vary from mild to severe but they too are always there. If memory serves, it took about 6 months for my PN symptoms to reach the stages it's now in. I've had PN for 20 years and all the symptoms reached it's present stage after the first 6 months or so and has remained this way for the last 19½ years! And now I'm learning that some of you seem to be saying there are periods of time where you have NO symptoms, or at least only some of the symptoms at varying times.

I just find this incredible as I thought everyone's PN symptoms was similar to mine with the exception of varying degrees of severity. It just never occured to me that the pain, pins & needles, burning, stinging, electric like shocks, numbness, etc were sometimes non-existent. None of my symptoms have ever gone away - not for an hour, or 1 minute, or 1 second. They are constant and have been with me all these years. The symptoms in my calves down are constant and severe. The other affected areas run from mild to moderate but they are always there. My pain medication makes life liveable by reducing the pain from the calves down to a tolerable 2 to 4 on the 1 to 10 pain scale and makes the pain in the other areas almost non existent - as long as I don't forget to change the patch when due!!!

Would someone please confirm to me that there are times when they have NO pain, no numbness, no pins & needles, etc etc etc ?

Hi - in regards to having constant symtoms - my PN is pretty much body-wide - but the only real constant is the numbness.... the pain, the tingling, pins and needles, etc.... come and go depending on how worn out I am - and how much physicall stress I've put on my body in the prior day or so (even though the NCS results still show the same amount of damage)........ also, I get IVIG and my foot - which is super numb - starts to tingle during the treatment - and does for the next day or so - and I think its a good thing in that I can tell my body is responding to the treatments in some manner...... (assuming that perhaps the type of PN we have (small fiber, large fiber, sensory, motor etc. - may make a difference?)

PN is a strange creature - I think we all suffer differently!

If you are experiencing sore spots all over your body, and PN, you really need to Google myofascial trigger points.

Steve,
Thanks for this post. I suspect you are right. I've been treated for myofascial pain in the past. It seemed to go away when I retired from work. Probably less stress and less upper body strains from computer, paperwork, really tight schedules, etc. But it just seemed to come back all at one time. I am really stressed and trying to do more than my body can in order to prepare for this trip to Mayo. So I may have stirred the old devils up again.

I haven't thanked all of you for your posts in answer to my queries. If I fail to or forget, please know that I do so much appreciate all your answers.

Billye