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Old 12-16-2008, 09:52 AM #11
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If you go to the links provided by MrsD, Glenn, Wings, Rose (if/when she visits) and a few others here- you will learn more about PN than your doc knows.
Your doc can't keep up. ......... You can.
If you have a good relationship with your doc, s/he will be open to new things you find out about (mine was listening to me & we were talking about Lyrica a year before it became available).
If you don't have that kind of a relationship, you'd better start looking around. ....This is going to be a long, bumpy ride.
I was ignerent (sp intentional!) of my condition when I was first Dx'd.
I found the old site (and a few others) and moved here with the rest.
I learned..... a lot !

When I see some post that rings a bell in my head, I chime in. I'm still ignerent, but my doc & I talk, and I learn more all the time.
We come here to share experiences, not to diagnose. Sometimes we warn , because of our own past experience, we don't offer medical advice, we offer our collective knowledge ..... as a friend.
We aren't neurologists, but we do seek out medical knowledge about our own condition(s).
We're here to help, because others have helped us and we want to take part in helping others. Kinda like a pay-back, if you will. (But I'm still learning more from this site, every day)
That's why I'm here, and why I think I'll stick around a while longer.
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Old 12-16-2008, 10:08 AM #12
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Lightbulb yes, Bob reminds me....

There is alot of homework involved with good internet use
to find medical solutions.

The problems that bring people here, the confusion, are substantial.

There is not an easy quick fix. To heal takes time. And the amount of information is huge.

The people who benefit here are those who accept the homework and do it.

Our culture has in the past just accepted the routine of going to the doctor, assuming the doctor knows what is wrong, and then taking the pill the doctor gives.
In reality some lifestyle changes must be done and other things need to be looked at. The very therapies sometimes used for other medical issues, CREATE new problems. (this is where I tend to focus).

So we are back to homework!
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Old 12-17-2008, 09:37 AM #13
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Quote:
Originally Posted by mrsD View Post
There is alot of homework involved with good internet use to find medical solutions.

The problems that bring people here, the confusion, are substantial.
There is not an easy quick fix. To heal takes time. And the amount of information is huge.
The people who benefit here are those who accept the homework and do it..........
The key word in that first sentence is..... 'good'.
There are a lot of "nay-sayers" and a lot of mis-information and outright bad information, if you want to find it. Many times it just pops-up while you are looking.
Be wary of 'quick fix' braggarts, and remember.......if it sounds too good to be true, it probably is.
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Old 12-17-2008, 03:34 PM #14
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I've learnt a lot of useful information and located other useful sites from here.

I'm really very grateful to those knowledgeable and caring people who post on here and I only wish I'd found this site before.

My health experiences over the years have taught me not to take any one piece of information on its own as being correct. Always try and cross check it as much as possible, even (and perhaps especially) when it comes from a doctor or consultant.

I haven't yet got all the answers I need to help me understand my condition and symptoms and how to address them. But I will keep asking questions and doing research here and elsewhere rather than putting all my faith in the medics.
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"Thanks for this!" says:
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