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Greetings...Sensory Neuropathy, Skin Biopsy, Gabapentin party

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Old 01-08-2009, 08:20 PM #1
sadfeet sadfeet is offline
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Originally Posted by Ivpound View Post
MrsD....I have not gotten my numbers from Latov in terms of levels. He is waiting for the results of the skin biopsy. Not a talkative guy...at any rate, I had had a panel done September, and my Vitamin B12 Serum was 592. And my B6 at the time was high at 28...three months later it is low?!?! I have been dieting (I need to lose 100 lbs, which I am sure will help the pain when I get there). My D levels were as follows:

Vitamin D, 1.25 Dihydroxy = 29 Range is 19 to 67
Vitamin D, 25-Oh, Total = 16 inidcated low 20 -100 is normal

Thanks and have a great 2009!!!
Dtiamin D 25-OH, D3 = 16
Vitamin D, 25-Oh, D2 <4


Vitamin E was right on target.

I am sorry I did not pay more attention in Chemistry class.

I am not even sure that this is all neuropathy, given that my pain DOES NOT get worse at night, and I sleep fine, and have no pain. Also, standing no pain. Wonder if real microcirculation issues are at hand. The pain is so annoying and that is why I was looking at the Neuro Essentials since the Lipoic Acid and Carnithine have proven helpful in some studies.

The other thing is an herb called horse chestnut which improves circulation. Who the heck knows!?
Mark,
I was diagnosed with mild sensory, motor idiopathic PN. I also have no problems at night, only when I am off my feet, walking is ok. I do not have the tingling while walking. Maybe our PN will disapear, just like it came, abruptly. I still find it hard to believe that I got this monster, mine is mild too, I feel terrible for people with severe PN. This is terrible. I started my vitamin regimen also, I also have an appt at the Univ Of Chicago Jack Miller, suppose to be tops In Peripheral Neuropathy. hope it helps Good Luck, and keep us informed, Lynn
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Old 01-08-2009, 08:51 PM #2
Ivpound Ivpound is offline
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University of Chicago. Don't go there, I am grad, and look what happened to me.

Just kidding, there is great research coming out of there, and the docs look like they are top flight. U need to find the right meds in the meantime while you work on the other healthy component.

Be well, and great luck to you.

Mark
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Old 01-08-2009, 09:53 PM #3
shiney sue shiney sue is offline
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shiney sue shiney sue is offline
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Default SadFeet
I hope you like J.M. they are very good.

Like others you have put a smile on my face as wel, Mark thank you.
Wondering if or when you drink does your feet itch? Drinking is on the
list in a big way of a no,no..I am on 3600 of Neurontin,hmmm makes me
walk like i'm drunk. Please visit again. Sue
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Old 01-09-2009, 10:23 AM #4
Ivpound Ivpound is offline
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No feet itching from Mr. Lagavulin. Also, no real side effects from Gabapentin, aside from being not quite able to always verbalize what I want to say.
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Old 01-09-2009, 05:41 PM #5
shiney sue shiney sue is offline
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Glad there are no itchy feet...I do have the problem with being able to
Verbilize, to be honest my 3 children all in there 30's say that problem
came before the med. This could be true ,but I sent them home with
and remind them they owe Mama Sue lot's of money,,now if I can remember
for what. Ahhh read up on IGIV sure is helping me as does the b6,and b12.
and Morphine if needed..My Neuro does not believe in her patient's
screming in the night or day.Some have so much pain with PN others
feel very little,this once again is a good group,welll to do as poor as can be,
but we care about each other,and it's always nice to hear anything new from
someone new,once again come on by ya here.Best to all the rest,Hugs Sue
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