i have never heard of gabapentin or lyrica,or any other drug getting sensation back in feet or elsewhere. Is that the reason your doctor prescribed it?

I agree... Neurontin and its cousin Lyrica do not restore anything.
They are for pain relief.

I would wonder if a vaccine triggered this?
Flu shot
Gardasil
Menactra (has a warning about GBS)
Hep B

I would explore autoimmune issues. Losing motor functions is alarming and should be investigated further.
Treatment for autoimmune is IVIG.

HAha, I know, my Dr. is an oddball.
She said that the Gabapentin is mostly used for neuropathic pain, and that there was very little chance that it could do anything to bring sensation back to my feet so she didn't want to get my hopes up.
However, She did say that there was a long shot, and that it could be worth a try.

I oddly haven't had any "dead" feet since going on it. But it makes me want to eat like all the grocery stores in the world will be closed and I need to stock up.

This is a area of interest for me too. I've only recently become aware of aching (muscle wasting ?) in my thigh area and am naturally anxious about it spreading or worsening.

I suppose I could get referred to an OT and perhaps I should. I don't swim, but do a reasonable amount of walking, mile a day average, up to 3-4 weekends. I haven't cycled for a long time but am pondering trying this or even an exercise bike, but don't want to do more harm than good !

Has anyone got any experience or advice they can share please ?

My PN is diagnosed as alcohol related - I've stopped completely - so hope things won't get worse.

to help your muscles. Yoga can be helpful too.
I found these 2 techniqes - very helpful for me.

I have been finally diagnose correctly a couple months ago from MS to PN. Yahoo! or not. All the glucose and blood work, skin biopsy come back normal. 2005 a spinal tap came back above normal protein level. Anyway, I to am on gabapentin. Found it had nothing to do with the muscle weakness in my arms and legs. Its frustrating..even folding laundry is a chore. I cannot stand for periods of time in one spot and my balance..well lets say I hope I never get pulled over for a DUI check...I totally fail on balance.

So this wll be a strong issue on next Neuro Dr. appt. The Gab stopped the burning to but everyday pain is an issue. I will take an oxcodine or a vicodin if really hurting and it helps.

I wish I could wave a magic wand and make all of feel better.... Best regards

Ed, I have the exact same symptoms, I have this intermittant weakness in my legs and arms. I had my second neuro appt today, and he said I have mild sensory motor neuopathy. He feels its about my glucose levels.(because he cant come up with anything else) My neuro does not feel at this time to do any more tests. Did you ask your neuro about Charcot Marie tooth (CMT), or chronic inflammatory demylenating neuropathy( CIDP).He ruled those neuropathys out for me but , but what is your next step? Are you going to do any more tests. I also started the vitamins, the only advice he gave me with those was watch B6, too much can cause neuropathy. Well hope that helps. Lynn

It does sound worth it to check out any neck problems with your arm weakness.

Basically i have never found anything that helps with weakness. I use a variety of orthotic devices, plus I walk with a walker and use a wheel chair at times. I go to the gym three times a week, so i know that i am as strong as i can possibly be, but I have never regained any strength that i have lost. I have recently lost most of the strength in my left quad muscles which is really difficult as it makes picking up my leg difficult. I can only lift it about one inch off the floor despite doing exercises to try and improve the strength.

oh well, nothing much i can do about it - i have motor involvement along with my neuropathy (sensorimotor axonal neuropathy).

cheers

raglet