I wanted further Scanning, simply for thoroughness and before trying anything else (Supps, Meds..)...and like you,.....I don't understand why my Primary Care Doctor is being obstructive re. a (seemingly formally required) referal for more MRI Spine Scanning,.... particularly as the Problem and the Symptoms are "Cause unknown" and not Trivial in Nature and also...when it won't cost anything to the NHS (UK)....I'm planning to do it at my own expense!!!!......obstructing me does'nt seem to make any sense!!!

I have checked online for Average European Scan Prices and can afford them.............I selected, online, a preferred Facility, "COBALT", in England but I am waiting for a more local, Private (UK) MRI Facility to get back to me via e-mail, on price....then all I can do is approach the Doctor again...I don't know if his attitude is based on Consultant's Report or what...but it should'nt stop me from organising and being referred for further Scans..surely!!?.......seems inhumane as well as being Illogical

Like many others with PN, I am now really struggling physically and its getting progressively worse...feel that I need to take some more investigative action, now!!........I know that this is happening in the UK but Absolutely "Any" Advice or Suggestions are Welcome.....
Ray

Thank you for your Post......Yes I remember Hummingbirds.....thanks for the Link, Site seems so much bigger, more info, now..got to go through it.....
My ME/CFS and the constant Mental/Physical fatigue (not many aches etc) began "before" I first started school, and has just continued, was on the lower end of the Scale initially....worsened the more effort was made, found necessary, as I grew up, got older.........no help from Docs here......

Couple of years back, the, then, latest "Genetic" info caught my eye, began thinking about where I fit in to the new 7 different varieties of ME/CFS, Research findings......your Viral possibility was suggested to me before and a search on that and Guillain Barre, read through online after your Post, kind of surprised me as to just how many Viral causes may be linked with ME/CFS.......I've sourced a couple of suppliers of Zinc Methionine online....and still thinking re Viral...

My current thoughts on the PN is......more MRI Scan Testing on the Spine, pronto, as the limb numbness symptoms and fatigue/balance, is getting much worse.....the MRI Testing Done only on my neck has always struck me as Minimal and it's been suggested in a helpful Post that a problem could be "anywhere" on the Spine....which is what I suspected....and now want checked

Doc has been unhelpful up to now re. more MRI work...but I need to get him on board somehow....I want to arrange a full spine Scan, which I would pay for...(NHS (UK) would take best part of a year to complete the necessary sequence) and I want to know asap, one way or another if there's Compression, impingement or whatever, before trying to move on...Doc has been very unhelpful about me doing this...which seems strange when the Cause is "unknown" and only minimal MRI Testing has been done......
thank you for these and any other thoughts and suggestions...all welcome.
Particularly as these Symptoms are worsening....

Ray

[QUOTE Sounds like this could have been a job for a Chiropractor early in the piece after the initial insult - however not sure how beneficial that would be now. Perhaps so![QUOTE]

Megan thanks for Posting me....sorry for delay in replying,......

I went to the USA end of October 2008......did'nt include this in previous Posts, trying keep things as brief as possible.....saw Erin Elster DC (found online) Boulder, Colorado........went there because she specialises in UPPER CERVICAL CHIROPRACTIC HEALTHCARE.....
Mainly because my Physical-actvity-caused, PN numbness gave me pain in my Cervical (neck) area, initially, for a couple of months, then went away....

Thought that I may have put the two Cervical Vertebrae..........
(C1..ATLAS and C2 AXIS) out of alignment, as Erin Elster described, causing lasting neurological irritation.....Was in Boulder for 2 weeks.....

Repetition every 2-3 days for several weeks, minimum, seems to be the standard procedure.......my neck definitely felt looser and "different" after each Manipulation, though too early to feel any numbness reduction.... I initially went for 2 weeks...intending to return at the beginning of this year, if I felt that this looked like it might work.....

I would have returned but the British Pound Sterling has, since then, plunged in value from around $1.80 to $1.37 (today)...so I've had to shelve the idea, at least for the moment.......

and it's not just a case of finding the nearest "Chiropractor"....the UPPER CERVICAL Technique is not a standard Chiropractic Technique, it is taught in the US.........I'd quite like to try it again, though, for longer.....

tried to put Erin Elster Website address in but message would'nt transmit with it in the message...

Ray