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Old 01-17-2009, 12:30 PM #1
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Default diary - to glenntaj

I try to keep a diary of my symptom - but I found that I don't remember what was the "burn" feeling like a year ago in comparision to now. When it burns - it burns.
So as you said - we will know if it progressive kind of neuropathy or stable one - only after a while.

I would like to offer to make somewhere in this forum - some kind of a table with the name, since when the neuropathy, what kind of N. ect. It will help the new here to learn more about the other in this forum.
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Old 01-17-2009, 12:07 PM #2
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Default GBS? to chamade

I think only the time will tell us what is it. since there is no test to say if it one onset or something that is very slowly progresse. For meanwhile - I'm trying to be optimistic and do my best to help myself.
Next month I'm going to see a new neurologist here. hope that she will tell me more, but also - there is no cure, but time, good diet and relax.
About twitching - my neuro said that - these are common complains of neuropathy and that this means anything. (So, even if this is not true - what can we do? so I choose to believe him).
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Old 01-16-2009, 12:34 PM #3
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Mine was a fairly quick onset. It started at the beginning of last November and in six weeks or so it spread like wild fire. It started with burning in my upper back, then to the side of my left leg, then the other. This is when I went to the neurologist. He took blood work and took an MRI of my lower back since I have back problems. The MRI was unremarkable, with some arthritis and such. He should have done my mid back and neck. Anyway after that he put me on gabapentin and that's it. It then spread to all over my body, burning, cramping, electric shocks, sharp pains. I'm trying to get a second opinion, but it's taking forever with the doctors. I wish I had some hope. I'm wishing the best for all of my fellow sufferers.
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