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Old 08-26-2012, 05:18 AM #11
LindaD88 LindaD88 is offline
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Join Date: Jul 2012
Location: Brinington Stockport
Posts: 12
10 yr Member
LindaD88 LindaD88 is offline
Junior Member
 
Join Date: Jul 2012
Location: Brinington Stockport
Posts: 12
10 yr Member
Default Small fibre PN progression

Hi, I am really interested in the progression of small fibre PN, I have it, in my legs from knees basically to toes. I am noticing other things now, i feel like i have shin splints often, my knees feel really stiff and painful, like the joints are hurting, i am taking a bunch of things, including gabapentin, as the lyrica sent me nuts. Mine is supposedly from B6 toxicity, but i was on humira at the time and having a lot of problems with it, and i dont know if that is playing in the mix or not. I am also on cortisone. I just wonder where does it progress to, and how long it takes. I am shocked at peoples stories, I had no idea what PN was 4 months ago, i did have lots of indicators but i didnt know what they were and with regard to the humira was having a lot of trouble. I feel i have been insane at the start with this, and it was grief, I know that now. No one really tells you how you mourn the loss of bits of functionallity and when you are not old, you are not expecting it. My heart goes out to the younger people, at least I am 59 and had some life. But to be young and in so much pain. The other thing that interests me is my familty dont really believe i have any pain, this bamboozles me, and annoys me too. I dont know what they think i am doing taking all the meds i take now for pain... best wishes to all of you SM PN sufferers, i am with you... xxxx
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