Hello,

Hope things are going well for everyone. Sorry that my posts have been few and far between - having some issues on the home front which are no fun and, quite frankly, not good for my health. But sometimes you must play out the hand that is dealt to you in hopes that the game doesn't go on too long!

Earlier this year I had 3 bladder infections in a row. My GP sent me to this wonderful and kind urologist who ordered several tests that, I admit, I took my time in taking because I'm sick of doctors and tests and these didn't sound like fun at all. Today I learned that I have a pretty big problem with my bladder and the inability to void even 50% at a time. He linked my problem to my neuropathy and was surprised I did not have MS because he called my bladder an "MS bladder".

Has anyone else had this happen to them and what was/is your outcome?

This is just another stressor. And oh, I was turned down for SSN disability benefits for the 2nd time last week. So now comes the hearing!

Wishing you all the best,
Nancy-H

Hi -
Sounds like you have a good urologist that understands neuropathy - thats a good thing.....
I've had similar problems and saw a urologist and underwent series of tests earier this year - some days ok - other days constantly "going" every few minutes..... the tests for standard problems were normal - but I have neruopathy throughout my intestines (autonomic) and the doctor attributes my problem to this...... bascically I've just had to learn to live with it - he didnt have any meds to offer that might help, and frankly, I have to take so many meds already dont want to take any more.....
You might watch what you are eating/drinking.... spices, etc.... I really had problems when I started having IVIG infusions (spent each infusion, about 4 1/2 hours each - having to go about every 15 mintes....)... over time my body seemed to get used to them - only happens occasionally now.... I only drink liquids (no spices or anything) due to the autonomic probems but the doc did say that if I was changing my diet in any way - to look for any changes........
Hope you can find something to help!

Urinary retention and urinary hesitancy can lead to sediments in the bladder causing stones to form in both the bladder and kidneys.
Any and all methods or medications for emptying the bladder should be attempted. Diuretics come to mind first.
Worst case scenario, catheterization (self or assisted) should be considered.

Yes. As a result of my B12 deficiency damage to central nervous system. The reason problems are much like MS is that the damage is much like MS.

Fortunately, although I had some scares, I never needed a catheter. Much improvement over much time.

rose

I get UTIs all the time, from what I have read this a common thing with PN. It just means more antiobiotics which I dont like. But since I cant fell very much they dont bother me as much as they would a "normal person".

Luckily my dr trusts me to know if I have a UTI or not, even though I send in a speciman with my husband the next day when he goes to work to take to the lab before he goes to work, it always is positive, just to make sure.

Hate to say that sometimes I wait days if its not easy for my husband to get the prescrepetion filled, but no big deal only hurts a little and just have to go to the bathroom alot, which is hard for me in a wheelchair.

Dana

Hello,

Ever since I was little, I had kidney and bladder problems. At the age of 18, I went to see a urologist. He did some testing and found out that my bladder closes up. So, he stretched my bladder and if any of you are wondering what that was like, I can tell you that was soooo painful. No anesthsia, no nothing, just laid me down on the table and stretched my bladder. The first time I had to go tinkle, I though I would die. I screamed in pain. The urologist told me that it would have to be done again at a later date. I never went back. I am now 52 and have put up with it all these years. I have PN in different places of my body but don't know if it is there or not.
Because of my congestive heart failure, I have to take three different diuretics daily. That helps me alot to be able to go tinkle.
I know this doesn't help you any but wanted to let you know you aren't alone with these kind of problems.
Wishing you well,
Linda

I wanted to add, don't give up on fighting for SS. It took me a lawyer and three years but I got it finally.

Take care,
Linda

Hi Nancy Jan 30th 2007 3:01 Am Est

Doug Here Have Had Neuropathy Since Late 2000 { Cidp } Well
Things In The Beging Were Very Painful And Today They Seem To Have Stableized But I Feel I Am A Walking Water Fouset
I Did Not Brig This Up To My Gp Who I Recently Saw For A Routine
Physical But Did Alot Of Blood Work
I Wanted To See If This Was A Diabetic On Set
Have To Get It Done Again Because Everything Came Back Contamiated
How Would You Know If You Have A Uti I Am Up 4 To 5 Times A Night
The Only Thing I Am Taking Is Tylonal Extra For Pain
Everything Else Has Failed
And Did You See A Uroligist
I Have Heard Pn Can Play Havoc On The Bladder If You Have Any Input As To How I Can Explain This To My Gp Any Help Would E Appreciated
I Am Going To Try The Cranberry Juice Method And See The Dr In Feb
And See If This Will Help At All

Doug