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Old 02-06-2009, 12:32 PM #1
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Default Getting well/remissions?

Though you hear much more about the progression of PN, some neurologists have told patients that there are incidences that neuropathy can go into remission or disappear. Sadly, I have not come across anyone yet who has been stricken with this disease and who has actually had this happen, but I guess it does. My question is, what kind of neuropathy would just go away on it's own? Some kind that just attacked the body and then just got better? I'm curious from a medical angle how such a healing would happen. Maybe someone more knowledgeable could explain?

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Old 02-06-2009, 12:52 PM #2
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Hereditary Neuropathy with Liability to Pressure Palsies (HNPP) is one. Here is a site for it. http://www.hnpp.org Just click on it. Full of information concerning it.
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Old 02-06-2009, 01:03 PM #3
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Hereditary Neuropathy with Liability to Pressure Palsies (HNPP) is one. Here is a site for it. http://www.hnpp.org Just click on it. Full of information concerning it.
Thanks Kitt, interesting.....I guess there are some forms of neuropathy which do have the capability of improvement, or resolution.

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Old 02-06-2009, 02:29 PM #4
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Here are some examples that come to mind of causes of PN in which the damage can be reversed. PN due to nerve impingement, PN due to diabetes or prediabetes if sugar is kept under strict control, PN due to toxic exposure if the exposure to the toxin is eliminated or if it is from medical treatment such as for cancer after the medical treatment is concluded. In the above cases the PN may only reverse if a healthy environment for nerve health is maintained such as with diet and supplement use. It may not go away on its own. There are people here who have reversed their neuropathy caused by diabetes and also some who have had sucessful nerve impingement surgery. I personally have not had such luck with toxin exposure caused PN.
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Old 02-06-2009, 02:53 PM #5
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It can happen if the cause can be found and corrected, although it takes a long time to heal completely, it depends on how much damage there is to heal.
Mine was caused from elavated blood sugars, classed as prediabetes but very close to full blown diabetic range, my PN symptoms have disappeared all together over approx 5 years period, i would say it is remission not cured because if i was to not look after my blood sugars, i am sure it would come back again.

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Old 02-06-2009, 02:56 PM #6
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Also, Glenntaj and David (Wing42) come to mind, as well.
David thru diet and Yoga, Glenn thru many different regimens over the years.
Both still post because they still have PN, only it has subsided
to near minimal symptoms compared to what it
originally was.......most of the time.
If memory serves me, neither are on any medications such as Neurontin/Lyrica or the anti-depressants used for PN.
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Old 02-06-2009, 03:49 PM #7
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It's all very interesting. Though my PN is still classified as being ideopathic, I really still want to have hope that through a good diet, the proper supplements and adequate rest, my PN might someday still have a chance of getting better. I guess I need that hope, because I have learned in my case and I am sure in the case of many others, that my state of mind REALLY affects my PN. When I get upset, cry, go into depair over my PN, I can just feel the pain intensify so much and actually spread around my body. The opposite is also so true. When I am distracted, happy, or laughing and yes, feeling hope about my PN, my pain level is less. I so want and need to feel that hope. It's so good to hear of success stories. I keep going into the stickys and reading those stories. I also admit, when I hear that some neurologists have said that it some cases it has gone away, I realize that is very rare, but just to hear it. I guess just the impact it has on one psychologically....

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Old 02-06-2009, 07:08 PM #8
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Quote:
Originally Posted by Hope15 View Post
Thanks Kitt, interesting.....I guess there are some forms of neuropathy which do have the capability of improvement, or resolution.
HNPP can and does get better at first but then with each episode it just continuously gets worse over time and never gets that good again.
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Old 02-06-2009, 10:11 PM #9
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Default Also

--many neuropathies that have acute onset--especially those that are traceable to an autoimmune onset--can get better over time, though it's usually a long time. that seems to be my case--I suffer(ed) from an acute onset body-wide burning neuropathy that came on in hours, progressed quickly, levelled off for several months, and then slowly began to recede.

As in the case of many other people with acute onset--those with Guillain Barre, for example--I do not have complete recovery (most of the prognosticators will tell you that with such syndromes there is "slow, partial recovery"), but I am certainly much better than I was, though I am still prone to flares and part of the residual damage is that I'm very susceptible to compressive effects that might not bother "normals".

In my case, I probably would have gotten somewhat better on my own, but I don't think I would have recovered as much as I did without the supplementation (B12, co-enzymated B's, essential fatty acids, lipoic acid, magnesium) or the attention to diet (I'm gluten free to the greatest extent that I can manage, and try to be as sugar free as I can--I'm insulin resistant, so no sense stirring that up).

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Old 02-07-2009, 12:46 PM #10
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We had a friend who had Guillian Barre. He couldn't lift his head off the pillow. He was of course in the hospital. His health came back pretty good but not to the extent that it was at all.

Another friend had Guillian Barre. She didn't have it as bad and her health came back to pretty much normal.
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