Hi all...I stumbled across this forum last night and I'm hoping to find some insight, advice, etc from those of you who understand how miserable this can be!

Back in April, I had a single level ACDF. Approx. 3 weeks post-op, I started having intense burning sensations around the edges of my heels. Within a couple of weeks, the entire bottom of both feet was burning. The neurosurgeon says there's no relation between the neck surgery and neuropathy in my feet.

My neurologist has done various tests: EMG and NCS on both legs/feet (mild tarsal tunnel in one foot). Lumbar CT showed a mild disc herniation which he said wouldn't be causing any issues. B-12 test was low and I've been on injections for about 6 months (tested negative for metals, HIV, etc.). At first, the B-12 injections seemed to help, but not anymore. I've been on Cymbalta, Lyrica and Effexor for the pain and none of them have helped.

The pain has intensified over the past several months. The way I describe the burning to people is "Imagine someone painting the bottoms of your feet with acid". On top of the burning, my feet are ICE COLD to the touch (also had a doppler on both legs - normal curculation). My right hand also stays cold. Over the past few weeks, my hands have been alternating with burning and tingling sensations (EMG in March was negative for Carpal Tunnel).

I feel like I'm losing my sanity trying to cope with all of these problems! To top it off, my job is at risk due to all of these appointments for more tests. Since June I've been diagnosed with PN, Raynaud's Phenomenon, mild tarsal tunnel, B-12 deficiency (last test was above average 10 days post-injection), and most recently moderate sleep apnea, severe RLS and severe PLMD. I think there are a few more, but my brain doesn't seem to be working too well these days either!

Is there anyone else out there with a similar freakish group of problems? Any suggestions on anything else that should be investigated? Of all the problems, the PN is the most frustrating because I can't find anything to help relieve the pain! I've learned not to think that the pain can't get worse...it CAN!