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Old 02-23-2009, 01:08 PM #1
EHorst99 EHorst99 is offline
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Quote:
Originally Posted by Hope15 View Post
What medication do you take, and how does it cover your pain?

What kind of pain do you have? Numbness? Balance problems or problems walking?

Has your neuropathy progressed? Improved?


I guess this is sort of a mini poll for those who are interested.


I have had neuropathy for about four months. I take 1800 mg. of gabapentin, which seems to work sometimes and other times it doesn't. I also take vicodin which sometimes also helps, depending. My pain ranges from fairly bad to lower level. The type of pain I have is body wide burning, stabbing, cramping, searing and stinging. Only rarely do I feel tingling. It will often come and go in specific areas, but is always going on. I currently have no numbness, balance problems or problems with walking at this time.

I saw a second neurologist recently, took another set of blood tests, and am having my first EMG in the beginning of March. I am also looking into going into pain management.
I first noticed my PN 14 months ago.

Symptoms have steadily progressed since then -- moving from toes to feet, to legs. Just starting in my hands the last two weeks.

Currently, I'm on 1500 mg of gabapentin per day, but I'm about to request increasing it to around 2100 mg/day since I'm starting to have pretty regular "break through" pain with only 1500 mg/day.

I've had extensive tests, but currently am labeled "idiopathic".
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Old 02-23-2009, 02:04 PM #2
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After 21 years and a gazillion tests I am still idiopathic. And no, I am not diabetic or near-diabetic. They can find no reason for my PN and I no longer care. The untreated pain is severe but for the past 7 years I get good relief using Fentanyl patches (125mcg/h) changing them every 48 hrs - this reduces my pain down to a rough 2 to 4 on the Mankoski scale. (And I don't want to think about those first 14 years - causes an urge to kill.)

I've learned to pretty much ignore these lower levels of pain as well as the numbness, pins & needles, and all the other PN symptoms. I continue to walk a mile or two daily and still drive my car w/o incident. Next month I'll be 77 so expect to stay this way till the end barring a miracle for which I'm not holding my breath. I thoroughly enjoy life and never feel sorry for myself: I have PN but PN does not have me. GO PNers!!!
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