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#1 | ||
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Junior Member
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Quote:
Symptoms have steadily progressed since then -- moving from toes to feet, to legs. Just starting in my hands the last two weeks. Currently, I'm on 1500 mg of gabapentin per day, but I'm about to request increasing it to around 2100 mg/day since I'm starting to have pretty regular "break through" pain with only 1500 mg/day. I've had extensive tests, but currently am labeled "idiopathic". |
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#2 | |||
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Member
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After 21 years and a gazillion tests I am still idiopathic. And no, I am not diabetic or near-diabetic. They can find no reason for my PN and I no longer care. The untreated pain is severe but for the past 7 years I get good relief using Fentanyl patches (125mcg/h) changing them every 48 hrs - this reduces my pain down to a rough 2 to 4 on the Mankoski scale. (And I don't want to think about those first 14 years - causes an urge to kill.)
I've learned to pretty much ignore these lower levels of pain as well as the numbness, pins & needles, and all the other PN symptoms. I continue to walk a mile or two daily and still drive my car w/o incident. Next month I'll be 77 so expect to stay this way till the end barring a miracle for which I'm not holding my breath. I thoroughly enjoy life and never feel sorry for myself: I have PN but PN does not have me. GO PNers!!!
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