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Old 03-22-2009, 05:15 PM #11
lynxgal lynxgal is offline
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Quote:
Originally Posted by mrsD View Post
I don't want to say the C-word....BUT....

it is a possibility.
There could be a tumor on the parathyroids or thyroid or a goiter that is pressing on a nerve. I had a one sided goiter that pressed on my laryngeal nerve, and changed my voice, for example.

Or you could have a swollen gland on one side due to infection, or even a <shudder> lymphoma.

That is why I think an examination is necessary.

When evaluating a side effect from a drug or supplement one needs to know that those do not cluster like that in one special area. Reactions would be more global.

Catching a serious thing in the throat early is the best prognosis if something dire is happening.
Thanks MRSD. Hummm, if it happens again before my Neuro appt. maybe I should pop it to see my GP. I stopped the COQ10 the day after my original post. That would have been March 14th. No change in the gastro issues. Maybe I should wait a little longer before starting it back up again?

I had one of those throat/neck spasms bring me out of a dead sleep. Nasty buggers good thing they don't last long. I've been assuming they are CMT related. Maybe not such a good assumption!
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Old 03-23-2009, 04:29 PM #12
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Arrow Appointment with CMT Neurologist...
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Originally Posted by lynxgal View Post
I have an appointment with the CMT neurologist in a week and a half.
Please post how you come out at the appointment. Are you also having DNA blood testing for CMT for all the types that they can now test for? I assume the neurologist knows CMT. Thank you.
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Old 03-23-2009, 06:11 PM #13
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Originally Posted by lynxgal View Post
Thanks MRSD. Hummm, if it happens again before my Neuro appt. maybe I should pop it to see my GP. I stopped the COQ10 the day after my original post. That would have been March 14th. No change in the gastro issues. Maybe I should wait a little longer before starting it back up again?

I had one of those throat/neck spasms bring me out of a dead sleep. Nasty buggers good thing they don't last long. I've been assuming they are CMT related. Maybe not such a good assumption!
I looked around for you, lynx, and found this:
http://www.nlm.nih.gov/medlineplus/e...cle/001636.htm
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Old 03-23-2009, 06:31 PM #14
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Hi Kitt, yes he is a CMT specialist. Not sure if they are doing the whole panel right away. I will know more after the appointment and will post as soon as I can that day.


Thank you for the link MRSD! Interesting info. I'll try to do some more research on that!
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Old 03-23-2009, 06:38 PM #15
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I found this link interesting. If you scroll down to the picture where they make an incision......that is the location where I get tiny mucle knots that if i push on them can trigger a headache. Have had these tiny knots on and off for years.

http://www.merck.com/mmhe/sec06/ch096/ch096h.html
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