advertisement
Reply
 
Thread Tools Display Modes
Old 03-15-2009, 04:16 PM #1
amit amit is offline
Member
 
Join Date: Jul 2007
Posts: 218
15 yr Member
amit amit is offline
Member
 
Join Date: Jul 2007
Posts: 218
15 yr Member
Default for those who are idiopathic

and for those who are not - who can say that the reason of his/her neuropathy is basically due to stress in life at the time of onset?
amit is offline   Reply With QuoteReply With Quote
Old 03-15-2009, 04:36 PM #2
GanaQ's Avatar
GanaQ GanaQ is offline
new member
 
Join Date: Nov 2008
Posts: 16
15 yr Member
GanaQ GanaQ is offline
new member
GanaQ's Avatar
 
Join Date: Nov 2008
Posts: 16
15 yr Member
Default

Is this sort of a poll??

All people have stress factors in their life one way or the other. There is always a stress factor present, especially if you have an undiagnosed disease which is not recognised as such yet.

Stress would then be that you keep doing as usual, but your body protests the stress of having to perform in spite of the underlying disease. I do not know, but I feel that patients too easily can get a brush off with stress from doctors. "It is just stress, go home and relax!"

I had my disease for years before being diagnosed, so yes, I had stress because I kept pushing my body to do the usual, and of course it did not like it!

So somehow the doctors were actually right. My body was stressed, but stress was not the cause of the illness, it was the symptom that something was wrong in my body. I now know that my disease is hereditary and hard to diagnose.

I hope that I did make some sense of the above for you, I have been thinking a lot about stress and stress factors and the way some doctors use stress as an excuse for not being able to find the underlying disease. This has caused me much anger - another stress factor for the body
__________________
GanaQ - living everyday by the grace of God
.

.


Take care and be well!
GanaQ is offline   Reply With QuoteReply With Quote
Old 03-16-2009, 01:09 AM #3
amit amit is offline
Member
 
Join Date: Jul 2007
Posts: 218
15 yr Member
amit amit is offline
Member
 
Join Date: Jul 2007
Posts: 218
15 yr Member
Default to GanaQ

It is a sort of poll. I'm trying to learn about my case - from all of you...

The meaning was - extreme stress before onset which might couse the onset of the illness eighter it is genetic or idiopatic or even from autoimune condition - and not stress during the long long way of diagnosis.

What is the genetic basis of your case? how long it took you to get the DX?
amit is offline   Reply With QuoteReply With Quote
Old 03-16-2009, 07:04 AM #4
darlindeb25's Avatar
darlindeb25 darlindeb25 is offline
Member
 
Join Date: Aug 2006
Posts: 744
15 yr Member
darlindeb25 darlindeb25 is offline
Member
darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
Default

Just like GanaQ said, it's hard to separate the stress from the situation. I too, had gone years with a disease that was not diagnosed, which stresses the body to a great degree. I think all of us with neuropathies, also had stress at diagnosis time. Especially idiopathic neuropathy. I knew I had neuropathy, I had been vitamin and mineral deficient for years, and I knew that had caused the neuropathy. My first neuro did not believe me, and never really addressed the neuropathy, he was always trying to make something else the reason. Thankfully, I now have a wonderful neuro who does understand the connection between gluten intolerance and neuropathy.
__________________
Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
darlindeb25 is offline   Reply With QuoteReply With Quote
Old 03-16-2009, 01:45 PM #5
Ron9's Avatar
Ron9 Ron9 is offline
Junior Member
 
Join Date: Oct 2007
Location: Kansas City Missouri
Posts: 36
15 yr Member
Ron9 Ron9 is offline
Junior Member
Ron9's Avatar
 
Join Date: Oct 2007
Location: Kansas City Missouri
Posts: 36
15 yr Member
Default

In my thinking - stress wrecks havoc on us.

In 1998 - I think I worked myself to death. I work from a home office. I had been working like 30 hour sessions - going up to bed for one or two hours and right back too work. That had gone on for months. On July 20, 1998 I died. Lucky for me I happened to be out that day and was found - revived (shocked by EM) and woke up thirteen days later. No one knows how long I was dead.

My wife (now no wife) overheard two Drs talking “if he ever does wake up he will be a vegetable”. Her “official version” was he will have brain damage - we just don’t know how much.

I had and still don’t have any heart damage or problems.

STRESS killed me ...... my body said “heck with you” and checked out.

That “might” have been the start of my nerve damage.

My PN (which is extremely bad today and yesterday) came on all of a sudden in April ‘04.

My long time wife took off mid ‘03 and the sadness was overwhelming. Added to that - my business was already seeing the crash that is in full swing now. My business (35 years self employed same business) is tied to manufacturing in the USA ....... that started going away several years ago.

Stress wrecks havoc on us.

“Is it worth dying for” - is the main message in several books regarding stress.

I am not talking about normal everyday living stress - I am talking about severe stress.

Stress will kill you.
Ron9 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
amit (03-16-2009)
Old 03-16-2009, 03:02 PM #6
amit amit is offline
Member
 
Join Date: Jul 2007
Posts: 218
15 yr Member
amit amit is offline
Member
 
Join Date: Jul 2007
Posts: 218
15 yr Member
Default agree

Quote:
Originally Posted by Ron9 View Post
Stress wrecks havoc on us.

“Is it worth dying for” - is the main message in several books regarding stress.

I am not talking about normal everyday living stress - I am talking about severe stress.

Stress will kill you.
I agree with you. As we know stress can cause to high blood pressure, heart attack. Does it can cause to a damage in our nerves system?
amit is offline   Reply With QuoteReply With Quote
Old 03-16-2009, 12:34 AM #7
jsrail jsrail is offline
Junior Member
 
Join Date: Aug 2008
Location: Scottsdale, AZ
Posts: 94
15 yr Member
jsrail jsrail is offline
Junior Member
 
Join Date: Aug 2008
Location: Scottsdale, AZ
Posts: 94
15 yr Member
Default

Quote:
Originally Posted by amit View Post
and for those who are not - who can say that the reason of his/her neuropathy is basically due to stress in life at the time of onset?
What a good question, dude! I hate it when docs default to stress as a Dx! Most of the time, I think its the lack of doctor training or forward-thinking that leads them to this. Mayo Clinic said the same thing about my SFN symptoms, saying that I had no neuropathy and that my brain was subconciously doing it. What BS, I finally got a real Dx when I went to the Neuro docs in AZ at Barrows Neurological Institute.

Jay
jsrail is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Idiopathic Hypersomnolence (CNS) dabbo Sleep Apnea & Sleep Disorders 23 06-18-2013 01:40 AM
idiopathic sfsn amit Peripheral Neuropathy 9 08-22-2012 04:25 PM
Narcolepsy and Idiopathic Hypersomnia Heidi L Sleep Apnea & Sleep Disorders 27 11-17-2009 02:25 AM
What is Idiopathic? cyclelops Peripheral Neuropathy 34 02-15-2008 10:56 AM
idiopathic sfsn amit New Member Introductions 4 07-18-2007 02:21 PM


All times are GMT -5. The time now is 06:22 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.