Here is a site which might help. You can Google others as well using NCV.

http://www.nlm.nih.gov/medlineplus/e...cle/003927.htm

Hope this helps.

Kitt

I had one three yrs ago, and was supposed to go again two months ago. I cancelled it. the zapping was what bothered me. I could handle the sticks with the needles, most of them, I couldnt feel. the electrical current however...bothered me as much as chewing on tin foil with your teeth. I hate shocking sensations. Particularly when my feet were icy cold, as they usually always are. I pray for the day they develop a much more suitable test for everyone to "enjoy"

Hi. My husband Alan had his nerve test done when he applied for Social Security Disability. I knew what he would go through because I had one also.

So the person giving the test is zapping his feet and he is just sitting there. No reaction. Now my husband has had PN for 18 years or so.
He had to go on a fentanyl pain patch for the pain in his feet.

so Alan is just sitting there asking the guy "when are you going to start?". the guy just shook his head. Only when the guy went up past his ankles did Alan go "whoa", and we all laughed. the guy said "well, thank god".

Alan kept saying to me "why did you think I wouldnn't like this test"???

Seems many people with PN are numb so this test is not that bad at all.

Now in my case. I had a pain in my upper shoulder. My doctor sent me for one of these tests. Wanted to see if there was nerve damage or something, I would assume. I also have a lot of anxieties, take xanax for a dental phobia and I admit I can be a pain in the butt about pain of any sort.

Now I had taken the test years and years before for carpal tunnel syndrome and I remembered I did not like the test way back then.

The test on my arm was about 7 or 8 years ago. I'm sitting on the table and the whole apparatus was completely different from when I had had the carpal tunnel test years before.

This time, the nurse is holding some kind of electric prod thing and she just touches it to my arm. I said "ow". She does it again, further up and I said "ow". She does it one more time (remember, I don't have PN, so I'm not numb anywhere). When she did it that third time, I jumped off the table and threatened to punch her in the face. I walked out, went to my doctor and he was hysterical laughing. when I calmed down I started laughing too.

It's all about pain threshhold. If you have PN, chances are you are numb like my husband so it won't be a big thing. He has told me "I would take this test again in a heartbeat".

See how different we all are??

mel

My tests NCV and EMG were done in 1986. I wasn't numb then and I'm still not. However, I know there are many with CMT who are. I wasn't thrilled with the test at all; especially toward the end of it. I told my regular doctor that if you weren't dancing when you went in, you were when you went out. The end of the test was a bit much for me. And I can stand pain. I think it depends on the type of CMT a person has; and there are many types. And also whether CMT affects the mylelin or the nerve directly. (Types again). I agree, we are all different.

Kitt

Wanna know what I think!!

Some day, we should get all these people who do the tests and make them sit down and give them the test.

Maybe then, they wouldn't be so matter of fact about it!!!

just my opinion.
mel

Hey, I'm with you on that one Sounds like a good idea and I've thought that more than once or twice.

Kitt

Hi Junie. I had a NCV several years ago. I won't lie, it hurt like hell but it had to be done. They started at my toes and went up my back/spine area. When she got to upper back I about bit the blood out of my hand.

I have much pain all the time, but the good part of this is when they are over with they are OVER!!

I don't think they can give you anything because they are trying to see where the pain is and where it hurts worse or if at all etc.

Now I'm no stranger with pain, can take most anythng up to a point, but this got a bit past "a point". I have many other injections in the spine, nerve blocks, and other precedures, but I may groan, but hurts too bad to scream!

If you have ever had a mamagram done, you know they put your breast on a shelf like thing, then they screw those 2 plates together to the point of wanting to scream, but the nurse always says"don't move"!! Like I could?? thats what I tell the nurse, no need to tell me not to breath. couldn't if I wanted to

So, the test hurts, but some worse than others, but when they "hit the right spot" they sure as heck knew it

Go on and take the test, have someone standing at the door with your strongest meds, as soon as its over take meds with water before you dress.

When they tell me I"will be uncomfortable " I know whats coming

You'll make it dear, I'm still here to tell about it. Let us know how it goes and if they were able to find what they needed to do about your condition.

good luck, Jo