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04-17-2009, 01:18 PM
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Grand Magnate
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If you do have a type of CMT Amit, it would help to know what type. Then you can go from there.
CMT2A2 is where the linkage or gene is mentioned. CMT2's are autosomal dominant axonal/neuronal. The Ascorbic Acid (Vitamin C) trials are for those who have CMT1A. There have been some that have been completed in other countries and I believe about four or so trials ungoing in the U.S. now. Hopefully, something will come out of them for people who have CMT1A. There are many types of CMT and it is complicated. There are 50 kinds identified so far and there is no end in site. They can do DNA blood testing for 22 + types. Just because the test does not turn up for one of these types does not mean that you do not have CMT. Again, it is very complicated and there is no easy fix. CMT is far too complicated with all the types that are known and those that are not known yet for any lay person to get very far into it. That also includes those of us who are living everyday of our life with one type of CMT or another type of CMT. And it also includes any neurologists/doctors who know near nothing about it. You need an expert in CMT to guide you thru your particular type if indeed you have it. The most common type is CMT1A.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." Last edited by Kitt; 04-17-2009 at 01:39 PM. |
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