Hi Cath,

You poor thing

I know it can be very scary. I had an full body small fibre neuopathy that also to some degree affected my autonomic system. Though my small fibre testing came back normal twice, there was clinical evidence to show I had an overactive symapthetic system that would set itself off even when I slept. It felt like it was getting worse the first 2-3 years but now I am in year 4+ and I can say I am much much better.

There is more specific testing done to confirm a diagnosis of autonomic small fibre. I went to a small fibre clinic here in Sydney and had testing such as tilt table,sweat test,breathing and some other tests... I forget. Though they all came back normal I was suffering alot and I had a hard time working and also looking after myself. I realised that even a slight disruption in autonomic function (dysautonomia) can be full on and hard to cope with. I had to take various meds to control some of the symptoms and just bear and grin with others.

I don't know what symtoms you are experiencing and what other testing other than EMG you have had. It would help if you can describe what's going on exactly and what you have tried in the form of meds or therapy to help.
Take good care weary traveler and don't think and feel you are alone.

Cheers,
Aussie