Johnny Cash had Shy Drager Syndrome.

He did. It's still considered Parskinsons but with additional features. Sufferers of it have orthostatic hypotension, their blood pressure gets extremely low especially upon standing or getting out of bed. And the standard Parkinsons meds make the blood pressure drop lower. It's a tough one to try to fix, you're always tweaking the meds a little here a little there.
The whole point was, though, that the Botox is what help open up her hands and perhaps it would be useful for raglet.

I started magnesium supplements a week ago, and will see how it goes. No changes yet, my hand once again is clawed up but i know it is early days.

I definitely do not have any atrophy, so it is highly likely that this is lupus seeing I have neurological involvement with my lupus. My neuro tells me that not having atrophy is a good sign, as otherwise they would be thinking of things like MND/ALS with my symptoms. So that is good.

Botox is worth exploring for me, but I know that nothing is guarenteed. I am just so excited that i had about 36 hours of being able to use my hand, even thought the side effects were intolerable.

thanks guys, you're the best

raglet

You should see some improvement by now. You should see improvement in a couple of days! UNLESS you are using a poor supplement -- like magnesium oxide. This is not absorbed to any extent and is useless.

So please read your label. Csn you tell us here what you are using and how much?

If you use a good supplement and it doesn't work for you, then that is your answer, that something else is causing the contractures.

this is what I am taking

http://www.healthchemist.co.nz/black...0-p907237.html

It has both oxide and phosphate forms of magnesium - hope that's ok. Blackmores is generally a good brand, which is why I bought it.

thanks again

raglet

Of that magnesium oxide 440mg about 8 mg gets into your blood stream. It is useless for blood levels. Studies have demonstrated this and are publicly available. 8mg is what is in an egg for example.

It would be best to try a better version. If you increase this product you would be getting too much B6. So don't take two of them etc.

Basically there is NO mixed tablet supplement that I have ever seen that provides adequate magnesium. They all use the old OXIDE for cost reasons, and historical reasons and to keep the tablets small. Ionic Fizz products, that you mix in water, DO have a more balanced amount but they are not tablets.

If you want to keep your supplement and use it up, add on SlowMag twice a day, and see what happens within a week.
Two SlowMags provide 1/2 the RDA of magnesium.

Or you can eat high magnesium containing foods. Almonds are quite high, and 3 oz of unsalted give 270mg!

Avoid OXIDE forms of magnesium, they do not provide much besides a laxative action.

thanks for the info Mrs D - I will find a supplement with the right sort of magnesium and top up with.

Thanks a bunch

raglet

i too have tremors in my right hand. at times i cannot even right. it is much worse when i am under stress. my doctors diagnosed me with multiple system atrophy. symptoms include: tremors, difficulty swallowing, horseness, sudden drop in blood pressure where i even have passed out.