Here is a picture of my hand which is twisting up a lot. I feel really sad about it, it is my dominant hand and obviously it is becoming difficult to do stuff with it. As always with this stuff, it happens gradually over a long period of time, then becomes abruptly much much worse. My other hand it a little twisted, but it's not as bad as the one pictured.

This is what it looks like - the fingers are bent obviously, but it also bends forwards at the wrist. It looks like it should be really uncomfortable but actually it isn't as that is just the way it is most comfortable for it to be. My wrist does get uncomfortable though.

thanks for reading and looking, a rather sad Raglet

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That has to be hard to live with.

Have you been tested for calcium levels?

I ask because I had a patient with a hidden parathyroid tumor
who had this.

Is this a part of Lupus Raglet? I've read that you have Lupus. I know it can affect much of the body.

A friend of mine had Lupus, Scleroderma and Rheumatoid Arthritis. Thanks much!

Do you have CMT?
Been tested?

I believe in her posts Raglet said she has Lupus. There are four types of Lupus and I don't think she said which type she has. Her hand problem could possibly be from Lupus and she also mentioned a hip issue I believe which can be from Lupus as well.

Raglet's hand claws but does not look like a CMT hand from the picture. And not all CMTers have clawed hands.

It doesn't mean that she doesn't have other health issues as well. Waiting to hear from her.

I see carpopedal spasm. The majority of effect is in the wrist. (the larger muscles are affected before the smaller for most people)
If you search this symptom on the net you will find some causes.
The most common (since this is not a common symptom) is
disturbance in calcium levels, and the ratio of calcium/magnesium.

I guess what is really important is to understand that things may be caused by more than one trigger. Very often when someone has a serious disorder, everything gets attributed to IT, when in fact something ELSE may be occurring as well.

That is the only reason I bring this up in this thread.
(not to refute the Lupus diagnosis).

My right is like yours bending of the wrist & fingers & my left is at the curled finger stage.

i too have tremors in my right hand. at times i cannot even right. it is much worse when i am under stress. my doctors diagnosed me with multiple system atrophy. symptoms include: tremors, difficulty swallowing, horseness, sudden drop in blood pressure where i even have passed out.