NeuroTalk Support Groups - STICKY - The Vitamin B12 Thread:

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- - STICKY - The Vitamin B12 Thread: (https://www.neurotalk.org/peripheral-neuropathy/85103-sticky-vitamin-b12-thread.html)

Quote:

Originally Posted by bis22 (Post 820774)

Hi, mrsD! I posted a thread here a while back about my small fiber neuropathy, and the other members told me you were on vacation at the time, but I was wondering if there was anything you could suggest for me. Many thanks!

The end of the URL is thread154928.html, title "Small fiber neuropathy not getting better or worse - advice?" (sorry, it won't let me post a link!)

I bumped up your other thread. ;)

Even though this post is not about b12 and PN, it's relevant in that this study confirms normal blood serum levels cannot be relied upon to diagnose anemia and cannot be ruled out in cases of anemia and PN. Like Mrs D states in earlier posts, most doctors believe you need to have a below normal B12 result for it to be considered as a possible cause for the blood or bone marrow disorders as well as PN. And if you're not anemic, your PN cannot possibly be from low B12 status. Well this study pretty much debunks this medical myth.

My husband had Severe Aplastic Anemia back in 2002. I wish I knew this back then so we could have tried B12 as his first line of treatment. Especially during that waiting period of getting a final diagnosis. We had two months before he started treatment. His B12 was normal at the time...I think it was under 500 though.

http://www.ncbi.nlm.nih.gov/pubmed/21252496

In the 12 cases here, all three lines, red cells, white cells and platelets were low.

Thanks, Marlene! That is really interesting.

Thought you find this one interesting. Copper is another micro nutrient that has recently gotten attention with MDS. Apparently low copper can also mimic MDS. And still, many doctors don't check for it.

I have also read that low copper can be implicated in spinal disc
ruptures.

One should get a zinc/copper ratio run before thinking about supplementing copper. It is not really common to be low in copper since many homes have copper water pipes.

And copper dosing has an upper safe limit, if I recall correctly. You can't safely take any amount at all.

Most of the sites today have this amount as upper limit for copper, 10mg a day.

http://lpi.oregonstate.edu/infocenter/minerals/copper/

Thank you guys for this great discussion. I have been looking into mecobalamin aka methycobalamin. Has anyone had a good experience with this coenzyme and with which brand/formulation? I am persuing the herbal/exercise regime to nourish my lower leg and foot nerves. Any comments and experiences that anyone can relate will be appreciated.
Robin:rolleyes::eek::confused:

Quote:

Originally Posted by Robibbie1 (Post 828304)

Hi there.

I'll hop on board this thread again. If you look at all the replies, you'll find me somewhere on all these pages.

I have been saved by taking Methyl B-12 every morning, and sometimes every other morning. My B-12 level is steady at 2000. Been doing this for quite a few years now. I get mine from Puritan's Pride because they have these good deals, buy 2 get 3 free and you can't beat that.

Helped me like nothing else could. I am completely free of neuropathic pain. I do have some numbness still at the tips of my toes but I have complete feeling in my feet and no burning or tingling.

Saved my life. I also control my blood sugar and don't eat processed foods.

So for me, Methyl B-12 was and continues to be a lifesaver.

Take care

Melody

Melody, what dose of B12 are you taking daily?