[deb54]

Originally Posted by CrimeofPassion

I was taking Jarrow 5000mcg Methyl B12 daily, and after about maybe a month of doing so developed shortness of breath (that was occasionally severe) and tachycardia.

I'd like to continue taking B12, though, and I've been told I should try Hydroxocobalamin or Adenosylcobalamin. Would anyone here recommend one form over the other?

I've been suffering from pectoralis/shoulder pain for 1.5 years now that the doctors couldn't seem to diagnose, and I discovered by accident that megadosing on the Jarrow B12 took my pain away COMPLETELY. It's very confusing - I don't know if that means the pain is being CAUSED by a B12 deficiency or what's going on. But because it made me feel basically 100% better, I'm desperate to continue with it! Alas, I have to breathe, and Jarrow's B12 made me feel like I was honestly suffocating at times.

CrimeofPassion...I was b12 deficient, discovered about 20 10 years too late, unfortunatlely, and started the subligual liquid Pure Encapsulations 2 yrs ago. I also have Psoriatic arthritis. My neck had been in unrelenting level 10 pain for 4 yrs. With the first 2500mcg of methly-b, my neck pain went to a level 4. The next day it was gone. In that month of higher doses of b12, I accomplished a year's worth of worth. I had barely been able to move for quite sometime.

Along with the unexspected pain relief and ability to move better, I also immediately began coughing. In that month I also experienced extremely unusual side effects to the methyl-b. I saw specialists for each and was told this was thier assumption. My doseage was cut in half, then half, again. I was tested for a year to try to discover the cause other than the b12. I had to reduce my doseage to 250mcg per day, barely enough to keep me thinking straight. When I take more I experience the breathing problems, skipped heart beats and irrational rage. I try to keep as close to a small dose.

So, you're not the only one experiencing adverse side effects, but you're one of very few, I'd suspect. Welcome to the herd, zebra friend.
deb...

[CrimeofPassion]

Originally Posted by deb54

CrimeofPassion...I was b12 deficient, discovered about 20 10 years too late, unfortunatlely, and started the subligual liquid Pure Encapsulations 2 yrs ago. I also have Psoriatic arthritis. My neck had been in unrelenting level 10 pain for 4 yrs. With the first 2500mcg of methly-b, my neck pain went to a level 4. The next day it was gone. In that month of higher doses of b12, I accomplished a year's worth of worth. I had barely been able to move for quite sometime.

Along with the unexspected pain relief and ability to move better, I also immediately began coughing. In that month I also experienced extremely unusual side effects to the methyl-b. I saw specialists for each and was told this was thier assumption. My doseage was cut in half, then half, again. I was tested for a year to try to discover the cause other than the b12. I had to reduce my doseage to 250mcg per day, barely enough to keep me thinking straight. When I take more I experience the breathing problems, skipped heart beats and irrational rage. I try to keep as close to a small dose.

So, you're not the only one experiencing adverse side effects, but you're one of very few, I'd suspect. Welcome to the herd, zebra friend.
deb...

Deb, this is FASCINATING. Thank you so much for sharing. Did your specialists ever tell you straight out that your neck pain was probably caused by a lack of B12? Do you know if your pain comes right back if you stop taking the B12? And lastly, did you ever try another form of B12 to see if you were just sensitive to the methyl-b?

[deb54]

Originally Posted by CrimeofPassion

Deb, this is FASCINATING. Thank you so much for sharing. Did your specialists ever tell you straight out that your neck pain was probably caused by a lack of B12? Do you know if your pain comes right back if you stop taking the B12? And lastly, did you ever try another form of B12 to see if you were just sensitive to the methyl-b?

Yes, to all 3 questions.

First off, tried a 2 different brands of methylcobalamin. The one mixed simply with water, pure cobalt stopped my breathing. Because of that, I was sent to an allergist who, after testing, determined i indee had a metal allergy. Of note: as an artist, I spent the first 20 yrs of my life licking the paintbrushes, as was instructed by our teacher. It gave a perfect point to the brush. ekkkk. Well, not good, as we used cobalt blue for everything. Okay, I already knew I was allergic to metals, gold, silver, etc...No doc would believe I could be allergic to cobalt, though.

It was never recommended to me to try the hydroxy or adeno-whatever...I will react to anything given to me. My team of docs are trying to keep my system from doing anymore changes. For example: I've recently been put on a topical magnesium. I can't sleep when I use it, flat out. I use it for muscle spasms. The muscle spasms (I have snapped an ankle tendon twice due to them) come when I use my narrow band uvb lamp for psoriasis. The vit d I get from the therapy lamp, quite a bit, sends my potassium/calcium into fits. go figure...

My neurologist told me that b12's job was to keep the myelin around our nerves in good repair. Think electrical wire that's been worn. It malfunctions. With my lifetime of inadequate b12, my myelin was shot. Add b12 and it began to rebuild..puff up, as I was told. Too little b12, even now, results in pain. Due to my adverse reactions I was told to not take it for 2 weeks..did that..back to level 10 pain by day 2. I then restarted on the very small doseage with less impressive results but still, better than horrible pain. Another thing that b12 does is to relax our muscles, tendons...that also helps with any pain.

I use the subligual because of several small bowel resections. I can't tollerate any pills or capsules, and the methyl-b sublingual supposedly is absorbed by the nerves directly under the tongue, heads to the spinal c3-4. I believe this is the area where b12 is then directed to it's various chores. It's the key that opens our cells ability to respond to the specific functions required.

Also had my lungs, heart, and sinuses checked out, as well as testing for possible ulcer and gerd. All major body parts are working fine.

I don't understand why there aren't others who react as differently as you and I do, but perhaps these others simply give it a try and then simply quit taking it. I certainly can't be the only one with oddball autoimmune diseases that needs b12.

deb..

[mrsD]

Originally Posted by deb54

Yes, to all 3 questions.

First off, tried a 2 different brands of methylcobalamin. The one mixed simply with water, pure cobalt stopped my breathing. Because of that, I was sent to an allergist who, after testing, determined i indee had a metal allergy. Of note: as an artist, I spent the first 20 yrs of my life licking the paintbrushes, as was instructed by our teacher. It gave a perfect point to the brush. ekkkk. Well, not good, as we used cobalt blue for everything. Okay, I already knew I was allergic to metals, gold, silver, etc...No doc would believe I could be allergic to cobalt, though.


deb..

This is very horrifying! Have you ever had heavy metal screening tests? I think you should have.

You know artists have been exposed to poisons for hundreds of years.

It is thought that Goya had a heavy metal poisoning, and perhaps Van Gogh (but that one is still being pondered).

Some printmaking artists mixed inks in the palm of the opposite hand... Munch I believe did that and was quite unstable mentally as well. However, the articles change with time, and the theories about "madness" also change.

http://bmb.oxfordjournals.org/content/68/1/167.long

Here is an article on pigments, their contents, and what dangers exist. The metals are only half the problem as some pigments have arsenic as the second part of the chemical compound in addition to the metal portion!

http://www.noteaccess.com/MATERIALS/ToxicityPigmt.htm
It discusses what is in some pigment colors. This article mentions pointing brushes with licking them and how dangerous that can be.