Hi kmeb,

Please can I ask you, do you take vitamin C at all?

I have found that it helps with infection type things.. When my eyes burn and I take it, the burning tends to go away.

I don't have a thermometer.

Hi -

I dont take any separate vitamins because my only nutrition due to gastroparesis (basically a paralyzed stomach due to autonomic neruopathy that has damaged the nerves the cause digestion)..... is Ensure, a nutritional liquid supplement only - and it is pure vitamins... My stomach gets very upset if I try to take separate supplements - but my docs also tell me blood counts are ok in that area and that since the Ensure is pure nutrition I'm getting all the vitamins I need... I am seeing a nutritionalist next though - and she may have some suggestions.....

(I need to gain weight but cant digest fat - or eat ice cream or anything like that - so thats a challenge we're trying to deal with)

KMEB

Oh, Kmeb, I am so sorry that I said that when it could have been hurtful to read.

I'm so sorry.

I'm glad you have such a good attitude. You have a brilliant attitude!!!!!!

Dont worry ! I've actually called Ross, makers of Ensure, and asked them exactly the miligrams of vitamins in each can of Ensure - because they list them as percentage.... they did a lot of research for me - and got back to me with it - they were great... however, I do need to expand my diet - and I'd kill for a french fry!!!!!!!

6 mos after my 'onset' my toes turned into swollen mini-hot dogs & the feet? well, THEY swelled up at least 3 shoe sizes - I'd been up and down the thyroid dosage scale for over 5 years...until then. Thyroid tests resulted in a 20+ mcg dose increase. Stable since then. Now with my other things happening, my docs are screening my blood w/a very fine tooth comb -more often than is the norm. It's a small comfort, I think.

As for temp- I also have a normal thats a few decimal points below the considered 'norm'. It will chug up to almost norm during the 2nd hour of IVIG. I believe that's the only time my tootsies ever feel 'normal' now.

Somebody! KNOCK WOOD QUICKLY! I'd said the words 'feel normal'!

Good thoughts and warm foot inventions to all! [gotta find them first!] - j

I have considered, but not actually done it - putting bricks in the oven and using them [wrapped of course] as old fashioned foot warmers. Has anyone tried this?

((((((((((kmeb))))))))))

What is it about French Fries?

That's really nice to hear that Ensure was so helpful.

french fries....

its been literally almost six years since i was able to eat solid food - so i dream about being able to eat - (literally - peope in my dreams tend to have normal heads - but sandwiches as bodies) - i miss eating - ever notice how many food commercials are on all the time!! and french fries just sound so good (and pizza, and sushi, and a big fat burger, and.......)

yum!

why are you not able to eat solid food?
I have Crohns disease....so I can relate, but only a teeny tiny bit!
Sounds awful. Crytearszzzz aka crytears on the old BLT!

Your dreams are ... wow, very ... wow, sandwiches as bodies...
boy what a hard thing to live without eating solid things. I have great respect for you!

Will it ever get better?

I was scared when I read your description because tetanus affects the stomach muscles, and it feels so uncomfortable. I started being afraid ...

Have to put a lid on being afraid.

So do you get B12 injections at all?

I was just thinking that the injections aren't like having to take a solid vitamin. OH... but then neither are the sublinguals.

(As far as I can tell, 6 of the 5 mg methylcobalamin sublinguals a day do not equal one B12 shot a day...)

((((((((kmeb)))))))))

No I don't mind charting my temp. Might be a good idea anyway. I'll set it up on Xcel. Easy to do. Then I think I'll make an appointment with an indocrinologist. It has bothered me long enough. My t3 &4 were off in the last test I had run. But when I saw the new rheumatologist, he thought they were fine because the TSH was fine. T3 &4 weren't but he told me it didn't make any difference because the TSH was fine. I decided not to argue at that point and I wasn't sure.

Anyway...
Billye