At least we can joke I guess. Humor is good medicine. I agree that if I ever get well if I see another doctor it will be too soon. I am younger then the average with this and that is the comment I always get at the doctors office that your too young to be here. I always say I am wearing a costume I really am 80 inside.
Anyhow I think for me support groups like this help me feel less alone which I feel in my every day life. I feel like an alien almost and can't even imagine what a "normal" life or body is any more. I really like the coping mechanisms people suggest here. I find people's suggestions on how to cope that actually face this every day a benefit. The hard part is when family and doctors tell me how to cope or how I am not. It aggrevates me.
kreink I find your suggestions helpful too.
For me it has also been trying to find things that I can do that I may have not wanted to before this but now does lift my spirits. Like beading or a board game.On the note of stairs I too live on a top floor but anyhow for a month I was staying on a one floor house and so I did not do stairs. Well when I moved I had to do them and let me tell you from not doing them everyday I had a real hard time relearning. I know everyone is different and for some stairs is not a possibility but now it really makes me aware of when I don't do normal tasks that people without pain do naturally I have a real hard time. That is like one summer I stopped wearing socks and then I could not tolerate them for a long time. Ok enough of my novel.