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Official name for genetically caused neuropathy

 
 
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Old 04-27-2009, 06:36 PM #4
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BEGLET BEGLET is offline
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Join Date: Sep 2006
Location: So Cali
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BEGLET BEGLET is offline
In Memorium
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Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
Default Genetic Names?
Hi Grizabella - I have by process of elimination of years of tests - what the docs are calling Hereditary Sensory Autonomic and Motor Neuropathy - there is no genetic test for it yet - Boston Gen is working on one now... There is very similar form that does have a test - HSANII - (just doesnt include the Motor Invovlement) - so they are getting there with the tests..... takes a long time.... I hope they can isolate yours
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