Well, a few things come to mind....some type of hyperostosis, basically out of control bone growth....mostly I am thinking of his foot....another thing,
cherry angiomas, well, they do occur as we age...(there is that word again), however, if he has had them for a long time, and given his sister has them, has he been tested for Fabrys?

http://www.mayoclinic.com/health/dif...stosis/DS00740

http://www.fabrycommunity.com/patien...abry-signs.asp

Just a thought, you can check these sites out and see if anything rings a bell.

So, will they continue the IVIG?

Hi there Cyclelops:

I checked out both sites. VERY INTERESTING. But he doesn't have any of the symptoms (thank goodness). But who knows. We discover new things every day. His sister has morton's neuroma and gets trigger point injections but they really don't help her. She told me yesterday that she puts a Poland Springs water bottle in the freezer and rolls it back and forth under her feet. Never knew this.

As far as IVIG, they are going to wean him off. So We shall see.

BUT I HAVE NEW NEWS!!!!!

We just came back from Dr. Fred.

In February Alan's PSA was 4.38. Of course we got scared, he went to urologist who wanted to do a biopsy we we went back to Dr. Fred and he said "take it easy, let's wait and see" and we did.

Well, I've been SPROUTING ALAN TO DEATH. I grow my own broccoli sprouts in my kitchen and we eat them EVERY DAY. So Alan's been eating my sprout patties (with tomato sauce),

We got his latest PSA result today.

3.11

WE ARE STILL SPROUTING!!!!

He's still going to eat tomato sauce on his food..

I told Dr. Fred. Next time Alan comes in, his PSA will be .2.5

He replied, I BELIEVE YOU, WITH YOUR SPROUTING.

So we shall continue to cross our fingers and toes. Hope you are good.

lol

Melody

That is great Mel, about the PSA levels coming down.

The back? Well, if it is not progressing, then I wouldn't do anything. I am very conservative that way.

I went to a pain conference yesterday, and the speakers were all in agreement about another spine problem, called Arnold Chiari malformation. They said that the increase in surgical fixes for this congenital malformation lead to increased pain and headache for many of the patients. The doctors yesterday said that they felt this procedure was not necessary in many of the patients that undergo it. (ie. rush to surgery does not always fix things).

I agree. Alan has the ball under his foot. He is supposed to roll it back and forth.
DOES HE DO THIS?? No!!! I found the ball stuck under the wheels of the computer chair.

I started yelling 'YOU ARE SUPPOSED TO ROLL THE BALL".

He exclaimed "Oh my g*d, first she has me eating sprouts, now I'm rolling a ball".

We both laughed.

I'm sitting here with the ball under MY FOOT.

It feels good.

And I'm curious about the PSA thing. Why would it go down? Why does eating lots of anti-oxidant rich foods and taking lycopene, well how does this affect PSA?

I'm going to broccoli sprout this man to death.

lol

Oh, you'll be interested to know how much fish oil capsules our doctor takes every day.

We told the doctor that we take certain supplements and that includes fish oil. We take one pill each.

Dr. F said "Want to know how much I take?? 4 grams!!!"

I looked at him and said 'YOU TAKE 4000 A DAY??" he said

"Yup, I take two capsules in the morning and two at night'.

I said 'Alan is on plavix and aspirin, wouldn't that be conra-indicated?" (he knew I meant the bleeding".

He said 'Oh you mean you're afraid of the bleeding?" and I said 'well, yeah, what might happen?"

He said: "The benefits of taking all that fish oil OUTWEIGHS any risk of bleeding, and though you might see black and blues, just derease it to 3 capsules".

We said "okay".

Alan went home and immediately added 2 more to his nightly regimin and I just asked him "how many will you now take?" and he said "4 a day".

I said "okay", I am doing this slowly.

I am doing two a day, and will go up to 4.

I don't know what reactions my body (my stomach I mean), will have if I go immediately to 4.

I also told the doctor that we take Vitamin D. He said "excellent".

So, besides my pills, SPROUTING WE SHALL GO!!!

lol