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Old 06-06-2009, 05:38 PM #14
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
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Hi. If you can see a reumatolgist who can maybe test you for like you said lupus and other types of auto immune. Also you said your b12 is low and do you know the results? Many here take supp and it helps them. You also said d is low so I hope you take a calcium with vitamin d as well. I saw your post on Hopkins and I know when I was looking into Mayo they had me send my records to them and they had a team look at them to review and see if they felt they could help me. I wonder if you call Hopkins if that could be an option and possibly they could direct you to the right doc. From what I have been told by my current pain doc is rsd and pn have a lot in common. The thing with PN is if you can find the underlying behind then you treat that and it can help repair and recover. With rsd it is managing the pain levels. Of course I could be off in what I am telling you or getting things mixed up. I do feel in both that proper pain treatment is key. What about an mri of the brain. I have this in my legs but also when I developed the severe ear/eye/head pain they did another mri of my brain and the ear to see if something was pressing or fluids etc. I would look into that cause I too thought I had a horrid ear infection the pain was so bad but it was not and the mri also did not show. Well sending thoughts
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