I've gone and figured it out.

I looked back at my old EMG reports and the only things that they really hadn't ruled out were CIDP and CMT.
(because it hasn't gone away)

However, because of the damage type and responses I was getting on my EMG it doesn't fit CIDP, and it does fit CMT.

My father also had a full hip replacement by age 40 due to deformity, and tinnitus. (ringing)
So, I'm thinking there may be something from him at least.

And my mother has foot pain as well as back pain, which I always associated with her obesity.
But could be more?

I go back to neuro on the 16th.. but I'm 99% sure this is what I have.

I've got foot drop, and my legs are "stork like" and everything.
The only bummer is there isn't a cure.

This is from my first EMG:

Polyneuropathy nerve conduction protocol was performed. Nerve conduction studies were performed in the right upper and lower extremities. Needle examination was performed in selected muscle groups in the right upper and lower extremities.

FINDINGS: Median motor amplitude is normal. Distal latency is prolonged, and conduction velocity is reduced. Median sensory amplitude is reduced, and distal latency is prolonged.
Median F-wave latency is essentially within normal limits of the estimate.

Ulnar motor amplitude is normal, distal latency is prolonged. Conduction velocity is also reduced. Ulnar sensory amplitude is reduced.

In the lower extremities, peroneal motor amplitude and distal latency are within normal limits, but conduction velocity is moderately reduced. Tibial motor latency is within normal limits, but distal latency is prolonged, and conduction velocity is moderately reduced.Tibial F-wave latency is within normal limits of the estimate however.

Sural sensory nerve conduction studies showed no response.

Needle examination of selected muscle groups in the upper and lower extremities showed evidence of mild chronic denervation affecting the distal muscle groups only.

IMPRESSION: this is an abnormal EMG, most consistent with a length dependent sensory motor mixed axonal/demyelinating polyneuropathy.

This is from a page on CMT:

Electrophysiology
NCV: Demyelinating Neuropathy + Axonal loss
Conduction velocities
Uniformly slow in all nerves
Mean 17 to 20 M/s
Range 5 to 34 M/s
Time course of NCV slowing
Clearly present by 2 years
Onset before clinical signs appear
Slower in earlier onset patients
Stable after age 5 years
No conduction block
Compound motor action potential (CMAP): Small
Due to axonal loss
Degree of reduction: Correlates with
Disease severity
Slowing of NCV
Nerve length
May be progressively reduced over time
Distal latency: Prolonged, Even in 1st months of life
F-wave responses: Prolonged
Sensory potentials
Often absent
Slow velocity & Small amplitude when present
EMG: Denervation, Distal > Proxiomal
Brainstem auditory evoked potentials: Delayed wave I
CSF: High Protein, Less in duplication patients
Pathology: Early excess myelin production

And here is what my 2nd EMG results were (from Mayo) *Done last summer*

" The sural sensory response is absent. The remaining sensory amplitudes show reduced and slowed conduction velocity.
The distal latencies are prolonged with associated condiction velocity slowing. The extent of conduction velocity slowing is not extensive enough to see dispersion. The peroneal F- wave response of the lower extremity suggest a slowing distally, but this is not clear in the other responses.
The R-1 blink response approaches abnormality.
The needle EMG is normal."

"Interpretation: The findings are of a length dependent sensory greater than motor primary demylinating neuropathy.
There is evidence for likely secondary axonal loss limited to sensory fibers. The R1 blink response approaches abnormality."

There are 22+ types of CMT that they can do DNA blood testing for. And there are 50 types of CMT identified so far and there is no end in sight.

Perhaps DNA blood testing http://athenadiagnostics.com would rule CMT in or out. However, you still could have CMT with a type that they cannot do DNA blood testing for yet.

If indeed you do have CMT, it would more than likely be inherited from either your mother or your father. Symptoms of CMT can vary greatly even within the same family. Symptoms can become evident when you are young, old, or in-between or they might not be evident at all but the person can still pass it on. Also, the different types and sub types of CMT affect people differently as well.

If you do indeed have CMT, that would be the type that is in your family. Perhaps checking out your family history might be of some help as well.

Before DNA blood testing became available in 1991, CMT was just known as CMT or Peroneal Muscle Atrophy. Now it is called CMT as well as Hereditary Motor Sensory Neuropathy (HMSN). They have come a long way since it was discovered in 1886. I hope you get answers and the correct diagnosis.

You also need to be seeing a neurologist who is very knowledeable about CMT.