Hi Bob,

My NCV both sensory and motor nerves show a polyneuropathy going on. Originally they thought CMT but now they are not sure because both my daughter (11 - test results worse then mine) do not have muscle atropy or clubbing of the toes/feet. I suspect but am not sure about this, the velocity ranges between her and I are so different, that that may be another reason why they don't think it is CMT.

My daughter has drop foot starting in both feet. I have mild drop foot (it has gotten much better since last summer. Almost walking normally again! ) only on the right side.

As far as CTS...not sure if they would be able to tell for sure based on my NCV LOL.

Here is the link to my orginial NCV results http://neurotalk.psychcentral.com/thread49714.html
My second NCV was done in April of this year. Results were worse in some areas....originally my ankle reflex was perfect. In April it was absent. On the second test my H-reflex was "Markedly Prolonged".

Hi lynxgal.

Even if you and your daughter both have CMT, the symptoms could vary greatly. I'm sure you know this.

However, keep us posted on your test results. Take care.

When I was first diagnosed I was told primary sensory motor mixed demylenating with a secondary axonal loss.

Now, they focus more on the demylenating part, and the lack of feeling and motor loss.

I've lost feeling from my calves down at one point and developed foot drop.

My sxs are intermittent, and at times I don't notice at all, and at times are terribly bad to the point I think I may hurt myself. (from falling)

I just told my mother to get an EMG, and she I think is going to get prior auth to get it done.

She has pain in her wrists and from her back down through her legs to her calves.
Hers is more nerve entrapment in her spine though.

Probably a bit more complicated if she has a daughter with neuropathy.

I don't have spinal problems.

Good luck figuring it out.. "ideopathic" is something no one wants to hear.

The details of your testing is Greek to me.
Maybe if Glenntag sees it (you could PM him), he'd be able to decipher it,
The interpretation of 'length dependent sensory motor polyneuropathy'
is exactly the same as mine.... with the addition of 'axonal' in my Dx.
But mine also is flagged with an interpretation of possible CTS,
so I got a referral from my neuro & went to see an orthopedics surgeon-
and he confirmed the CTS Dx. Both hands/wrists - right more severe
than the left (I'm a 'lefty') .
I've been having cortisone shots every 9-12 months
for the past 3 yrs, but I think its gonna be slice & dice
on the right wrist, pretty soon.

How did you come out with the spinal tap? Or don't they have the results yet? Thanks.

Hey Kitt thanks for asking,
I am not even scheduled for it yet.

They want to get the EMG first (my 4th).. and they couldn't get me in for that until next month.

So I've got some waiting to do until the spinal tap.

I'll have it done next month.. as they said I could get in within 3-5 days.
However, they wanted the EMG first.

Hurrah for repeat procedures???