These past couple days have been impossible.

IDK if its the heat, but its just been really hard to move at all.

I have to take my dog out and it takes twice as long as it did before.
I really need to focus on walking to almost will my body to continue to move.

My movement feels uncoordinated and choppy. Not like one would expect from a female my age.. but then again, what should one expect from a person my age with a demyelinating disease?

I've been sleeping longer and longer.
And not going to bed later.

Yesterday I didn't get out of bed till 10 or 11, and today I didn't get out of bed till nearly 1pm!
*I go to bed at 10pm*

I obviously get up a few times to let the dog out to do her business, or else it would be animal cruelty.
I fed her, but then I went straight back to bed.

I'm still quite tired.
Typing is even difficult. The muscles in my arms have been sore for no given reason.

2 nights ago I fell because my leg muscles tensed up in the middle of the night.

I just feel so crappy all the time..
Not how I think a 23 year old should feel.

I may go lay back down.
(Just looked at the clock.. I've been awake for an hour and 30 minutes..)

Sounds like my life but without the dog. do you have pn.I to am a 43m and am asking the same ?'s. hang in there hopefully things will get better for both of us.

Hey pbrown-
Yes, I've had 3 EMG's which confirm that I have a "sensory greater than motor demyelinating neuropathy".
Which is just the long mumbo jumbo for PN.. or the type I have.

I also have a secondary axonal loss.. which means not only is the myelin sheeth destroyed, but the axon is as well.

I hope you get some answers to your questions, I read the thread you had posted, but I'm still somewhat new to this myself.

There are some great people on the site who have a TON of knowledge though, who can steer you in the right direction.

Good luck.

Hi I am so sorry. Are you seeing a pain management doc? If not I encourage you too cause sometimes a muscle relaxer or other meds may help assist you to get moving. Trust me I know how hard it can be to get going through the pain and stiffness but I know for my issue and you may be different it is key.Do you take baths? Some find epsom salt helpful as well. Feel better and trust me I am 30 going on 75 often times. You have to hold to hope though it can get better and the young spunk can come back

Greetings, I find some similarities in your and my symptoms.

One, with the weakness, tiredness, you may want to have your B12 level checked, pernicious anemia can cause this.

The walking issue, mine is from cervical and lumbar stenosis, the spinal column is pressing on the spinal cord. The spinal column should be about a size 10 (cannot remember if it should cm or mm, not up on the metric system). My cervical column is now down to 6-7, critical stenosis. And have a constant burning cold pain in both fore arms and the outsides of both palms.
It feels like my skin is in contact with ice.

And have difficulty walking and have to use a can to help from falling over. The dog now walks me and it does take twice as long as it did before. And now loosing ability of 2-3 fingers on both hands, started with ring fingers, now both tall men are not working up to speed.

You may want to hook up with a neurologist or neurosurgeon to get some tests done for a proper diagnosis.

Sorry you are going through all of this and that you find some answers soon.

Peace,
David