Megan & DejaVu,

Everyone is entitled to his/her own opinion.

Any malaise that is diagnosed entirely on subjective analysis
and not on laboratory test results is subject to misuse.
There can be no denial that some docs use these maladies/diseases as a grab-bag and alternative to 'idiopathic' to dismiss patients they do not wish to take the time to properly diagnose.
It gives the patient something other than 'no cause found'.
My opinion is based on this occurring too frequently in the USA,
from reports/posts that I have read over the years, as well as drug co.'s pushing the meds and causing hypochondriac attitudes in the suffering public)
Again, everyone is entitled to his/her opinion.

To all who have responded, hopefully this will clarify.

I have copies of all three visits, the EMG/NCV, and the labs. I wrote the letter and mailed it a week and a half ago. I talked to the doctors staff about the situation as my PCP is aware of the situation and sent over a referral for me to see the neuro who conducted the test. They are reluctant to let me see that neuro until my neuro decides if he'll release me to do so. I am trying not to cause any ill feelings here as the neuro I have a longer relationship with has been really good to me, up until now. So thats why I have written the letter.

At this point, I think I need to see another neuro as the test results are quite clear. I am diagnosed with FMS, but I know that what I am feeling is not related to that. I also took copies of these records to my rheumatologist last Friday. I hope he'll read this and have something to say about it.

Anyway, I'm really in the dark here and I'm trying to handle this in a way that I won't burn any bridges with this doctor, but maybe thats inevitable, I don't know. I'm feeling a little insecure as a result of all of this, and unsure of what to expect from this condition. When I read all the info about the condition, its pretty scarry.

Thanks to all of you for your replies. I really do appreciate them. EE

yes, anyone receiving this dx, without a thorough work up has been ...hmm miss treated.....and perhaps misdxed......as far as the studies that show the brains are altered, well guess what? pain will do that to ya...ie central pain sydrome......

Can someone please tell me the symptoms one can have with fibromyalgia? I always thought it was felt in the muscles? Can one have nerve pain/symptoms as well? Thanks....

Here is one site. Click on:

http://www.mayoclinic.com/health/fib...mptoms/AR00054

Here is another. Click on:

http://arthritis-symptom.com/Fibromy...toms/index.htm

DejaVu,

Thanks for your response. I will update this post as time goes on. I will be contacting another neuro this week and get an appointment as I really need someone to address this in detail and give me some treatment options.

EE

Yes, please do! Interested in how this goes for you!

EE... I think looking at the new information out there on Fibro may help you figure out where you are with this problem.

Basically Fibro is triggered by other issues, trauma, disease, PN, vaccines, etc.

I have a thread on Fibro forum that contains the distilled newest information on this that I obtained from a medical conference in 2007. Dr. Clauw...a prominent researcher gave the lecture.
Here is the thread:
http://neurotalk.psychcentral.com/thread20030.html

It is possible you have real nerve damage, which may have or may have NOT triggered Fibro. Not everyone who has pain has fibro. 2-7% of people may get it, and it tends to run in families, and is more common in women. Although some men do have it too. There are no tests that I know of to diagnose fibro. It remains an impression by the doctor (not unlike ADHD in kids).
So being a subjective diagnosis it places the patients in a tough spot.

You can Google Dr. Clauw...he is on the net on many fibro web sites now. He is very intelligent, and a very good communicator.

I do agree that some doctors will just follow what the others have said and sometimes a new look or approach can make a huge difference. My recent pain doc had a different approach and would not just go with what the others had said. I would just tell the new doc that before you tell them what the others said you wanted a fresh look and what they feel. Through my many docs I had one throw out the idea od fibro or myofacial pain but I do not have that at all. If I would of stuck with him he would of treated me for that. I am not saying this is for you but just a thought I guess. Feel better

I sincerely appreciate everyone's thoughts on this. I still don't have an answer and will probably call towards the end of the day. It shouldn't take them too long to decided if they'll see me or not.