yes, anyone receiving this dx, without a thorough work up has been ...hmm miss treated.....and perhaps misdxed......as far as the studies that show the brains are altered, well guess what? pain will do that to ya...ie central pain sydrome......

Can someone please tell me the symptoms one can have with fibromyalgia? I always thought it was felt in the muscles? Can one have nerve pain/symptoms as well? Thanks....

Here is one site. Click on:

http://www.mayoclinic.com/health/fib...mptoms/AR00054

Here is another. Click on:

http://arthritis-symptom.com/Fibromy...toms/index.htm

DejaVu,

Thanks for your response. I will update this post as time goes on. I will be contacting another neuro this week and get an appointment as I really need someone to address this in detail and give me some treatment options.

EE

Yes, please do! Interested in how this goes for you!

EE... I think looking at the new information out there on Fibro may help you figure out where you are with this problem.

Basically Fibro is triggered by other issues, trauma, disease, PN, vaccines, etc.

I have a thread on Fibro forum that contains the distilled newest information on this that I obtained from a medical conference in 2007. Dr. Clauw...a prominent researcher gave the lecture.
Here is the thread:
http://neurotalk.psychcentral.com/thread20030.html

It is possible you have real nerve damage, which may have or may have NOT triggered Fibro. Not everyone who has pain has fibro. 2-7% of people may get it, and it tends to run in families, and is more common in women. Although some men do have it too. There are no tests that I know of to diagnose fibro. It remains an impression by the doctor (not unlike ADHD in kids).
So being a subjective diagnosis it places the patients in a tough spot.

You can Google Dr. Clauw...he is on the net on many fibro web sites now. He is very intelligent, and a very good communicator.

Mrs. D,

I was previously diagnosed with fibro a couple of years ago. My neuro knew this. The EMG clearly shows peripheral neuropathy and lumbar radiculopathy which was done by his associate. That is the confusing part since the test record indicates "abnormal results" and his written report also indicates that. They use a computerized system and scan all handwritten documents in. I have copies of both.

I know what fibro feels like and the numbness and burning pain along with the shooting pains aren't from fibro. They are from the PN and indicative of nerve pain. I though they might be related to disc issues I have but since the EMG/NCV I realize they are from the PN.

It seems as though my regular neuro just lumped these symptoms into my fibro and doesn't want to deal with the PN. He said to me before the test that he suspected my results would be normal and when they weren't, he dismissed them, which I think is wrong and my PCP also thinks is wrong. It doesn't make any sense to me .

Take care and thanks for replying. I hope I haven't caused a lot of confusion as sometimes my posts aren't clear due to my meds. EE

I do agree that some doctors will just follow what the others have said and sometimes a new look or approach can make a huge difference. My recent pain doc had a different approach and would not just go with what the others had said. I would just tell the new doc that before you tell them what the others said you wanted a fresh look and what they feel. Through my many docs I had one throw out the idea od fibro or myofacial pain but I do not have that at all. If I would of stuck with him he would of treated me for that. I am not saying this is for you but just a thought I guess. Feel better

I sincerely appreciate everyone's thoughts on this. I still don't have an answer and will probably call towards the end of the day. It shouldn't take them too long to decided if they'll see me or not.

Your neuro should not be threatened by another neuro's opinion. If NCV tests show PN than it is safe to say you have PN. Often, PN starts in the smallest nerve fibers which is not picked up well on NCV. If you have FM, then chances are your CNS will have a hypervigilant state to pain signals. So if PN is sending more pain signals to your brain, then due to FM, you will hurt "more." There is evidence that FM patients may have more substance P in their CSF. This is evidence that FM may be a "real" diagnosis, and not the hypochondriacal malady that half of doctors think it may be.