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#1 | |||
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Wisest Elder Ever
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![]() The product you mention in your post...has benfotiamine and methylB12 in it. The benfotiamine is a low dose at 100mg. That product is quite expensive, and today you could get both ingredients much less expensively. (the other Bs in that product are not high dose) I'd get tested for Vitamin D levels and B12 and see what that shows. There are many causes of neuropathy. Autoimmune, toxins, drugs (statins and fluroquinolone antibiotics among some less common drugs), hereditary, etc. If you have a hereditary form, not much in the way of supplements will help. If from drug toxicities, acetyl-l-carnitine may help. Autoimmune is treated with RX IVIG infusions, and some immune suppressing drugs. Poor circulation to the feet...peripheral artery disease should be evaluated. Did you have chemo for the melanoma? Chemo can cause PN. Are you gluten sensitive? Ever try the gluten free diet? This may help when other venues are closed. These are just some ideas that come up on this board from the various posters. PN is very complex and different from person to person. Your back issues may be the main cause for you or you may have some mixed issues as well.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | TallGuy (07-02-2009) |
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#2 | ||
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Magnate
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Hi and welcome though I am sorry. Have you had emg/nc? I too would get an mri of the spine. I know my gramps has PN and has balance issues and numb feet but not pain. He has special shoes that are not diabetitic but were made to help. He also sees a holistic doc who has him on an extreme amount of supp and he see's benefits. I have not seen benefit for me but my PN and RSD is more pain then your symptoms. On a side note I understand about the scams. I just try to get info here and then make my choice. Certain items though I have seen on the net if it sounds too good it probably is in my eyes. Sending thoughts
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"Thanks for this!" says: | TallGuy (07-02-2009) |
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#3 | ||
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New Member
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THANK YOU so much for the replies. I no longer feel alone on this issue.
Firstly Chemar for moving my post and the helpful comments. Papp for the suggestions regarding my back and diabeties. MrsD for so much help which I have already started to seek further information on. I didn't have chemo for my melanomas they where cut out. Daniella for also suggesting spine check and her comments regards scams. So many avenues to go down but at least I now have a much better map to follow. ![]() |
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#4 | ||
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Junior Member
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Welcome!
I have no pain associated with my neuropathy either. I have a "sensory greater than motor demyelinating polyneuropathy with secondary axonal loss" They are testing me for CIDP... which, I will probably have. I've already had many things ruled out. If you go to the important links thing up top you can check what tests and things need to be done. And there is another nice site from Seattle that if you click demyelinating neuropathy or whatever you have it will list off a possibility of what you could have. So if you have had tests and been ruled out.. it makes it easier on you to know what you can have. Not everyone gets pain though, and I am glad I don't have it. I get really bad numbness, and I am also losing the ability to walk. |
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"Thanks for this!" says: | TallGuy (07-03-2009) |
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#5 | |||
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Senior Member
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Quote:
What ??? Where?
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Bob B |
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#6 | ||
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Grand Magnate
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What is the site?
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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