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Old 07-02-2009, 11:05 AM #1
daniella daniella is offline
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Hi and welcome though I am sorry. Have you had emg/nc? I too would get an mri of the spine. I know my gramps has PN and has balance issues and numb feet but not pain. He has special shoes that are not diabetitic but were made to help. He also sees a holistic doc who has him on an extreme amount of supp and he see's benefits. I have not seen benefit for me but my PN and RSD is more pain then your symptoms. On a side note I understand about the scams. I just try to get info here and then make my choice. Certain items though I have seen on the net if it sounds too good it probably is in my eyes. Sending thoughts
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TallGuy (07-02-2009)
Old 07-02-2009, 05:15 PM #2
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THANK YOU so much for the replies. I no longer feel alone on this issue.
Firstly Chemar for moving my post and the helpful comments.
Papp for the suggestions regarding my back and diabeties.
MrsD for so much help which I have already started to seek further information on. I didn't have chemo for my melanomas they where cut out.
Daniella for also suggesting spine check and her comments regards scams.
So many avenues to go down but at least I now have a much better map to follow.
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Old 07-03-2009, 09:27 AM #3
diagnonsense diagnonsense is offline
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Welcome!

I have no pain associated with my neuropathy either.
I have a "sensory greater than motor demyelinating polyneuropathy with secondary axonal loss"

They are testing me for CIDP... which, I will probably have.

I've already had many things ruled out.

If you go to the important links thing up top you can check what tests and things need to be done.
And there is another nice site from Seattle that if you click demyelinating neuropathy or whatever you have it will list off a possibility of what you could have.

So if you have had tests and been ruled out.. it makes it easier on you to know what you can have.

Not everyone gets pain though, and I am glad I don't have it.
I get really bad numbness, and I am also losing the ability to walk.
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TallGuy (07-03-2009)
Old 07-04-2009, 07:36 AM #4
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Quote:
Originally Posted by diagnonsense View Post
......And there is another nice site from Seattle that if you click demyelinating neuropathy or whatever you have it will list off a possibility of what you could have.
So if you have had tests and been ruled out.. it makes it easier on you to know what you can have.

What ???
Where?
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Old 07-04-2009, 09:39 AM #5
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What is the site?
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