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Newest EMG worse than last, but don't understand it.

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Old 07-13-2009, 04:04 PM #1
lynxgal lynxgal is offline
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My daughter's NCV stated something similar. It said primary demyelinating neuropathy. (didn't say anything about axonal loss and neither of us has had an EMG just the NCV).

As I have a confirmed demyelinating polyneuropathy I'm going to wager it is CMT.

Please post when you have seen the neurologist on Wednesday I am very anxious to hear what he has to say.
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Last edited by lynxgal; 07-13-2009 at 04:23 PM. Reason: added something
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Old 07-13-2009, 07:49 PM #2
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Hey,
Just writing to say I got your message.
And I will keep you updated on what my neuro says.

Its bound to be interesting.

I'd actually be mighty surprised if I was told I had CMT, because I think the absense of response in those 2 nerves is whats known as a "conduction block".
Although, with CIDP the damage is often in the motor nerves there is a variant known as MADSAM which is a sensory and motor (which is the SAM).
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Old 07-13-2009, 09:01 PM #3
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I have a sensory nerve with no response. Are your reflexes still intact? I have lost reflex in one ankle. It went from "brisk" to no response in 8 months.

** correction to my earlier reply**** my daughters report said primary demyelinating motor and sensory neuropathy. *** sorry misquoted the report :P

My report says sensory motor neuropathy... at the time mine was more sensory.....now I think it is more motor.
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Last edited by lynxgal; 07-13-2009 at 09:08 PM. Reason: typo :P second time added something....
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Old 07-13-2009, 09:27 PM #4
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I know they bang on me a lot to try to get one. And sometimes they can get them.
However, there is no reflex response in my feet.

Does CMT have reflex responses?
I don't think people with CIDP do.
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Old 07-13-2009, 09:30 PM #5
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If I remember correctly from my reading, it is hit and miss, some have reduced responses and some have absent and in some types of CMT there are mixed results.


I find it weird that I only have one reflex that is absent.
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Old 07-13-2009, 09:40 PM #6
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Ah, ok.
Thanks for the clarification.

I hope a diagnosis comes for all of us.
You, your daughter, and I..
Cause not knowing I think is the hardest part of all.

After that, well.. at least you have the long awaited answer.
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