Ok, I got the dictation today.

It says:

"Findings: Distal latencies were prolonged and conduction velocities reduced in nearly all nerves tested. Ulnar SNAPS were reduced in amplitude. Peroneal and sural SNAPS were absent.

EMG of selected upper and lower extremity muscles was normal except for some reduced recruitment in the left FDI and gastrocnemius.

Conclusion: The is an abnormal study. There is electrophysiologic evidence of a primary demyelinating sensorimotor polyneuropathy with some secondary axonal loss on NCS, though there was no difinitive evidence of denervation on EMG."

.. MMKAY.

So I have zero clue what that means other than I now have 2 non-responsive nerves and a year ago I only had 1.

Does anyone have any clue does this EMG report line up with anything that they know of?

I go to neurology on Wednesday, and I just have a feeling now that she's going to tell me that she wants that darn nerve biopsy.
And I'm never going to get anywhere..

I hate to get all pesimistic.. but, its how I'm feeling ATM.

My daughter's NCV stated something similar. It said primary demyelinating neuropathy. (didn't say anything about axonal loss and neither of us has had an EMG just the NCV).

As I have a confirmed demyelinating polyneuropathy I'm going to wager it is CMT.

Please post when you have seen the neurologist on Wednesday I am very anxious to hear what he has to say.

Hey,
Just writing to say I got your message.
And I will keep you updated on what my neuro says.

Its bound to be interesting.

I'd actually be mighty surprised if I was told I had CMT, because I think the absense of response in those 2 nerves is whats known as a "conduction block".
Although, with CIDP the damage is often in the motor nerves there is a variant known as MADSAM which is a sensory and motor (which is the SAM).

I have a sensory nerve with no response. Are your reflexes still intact? I have lost reflex in one ankle. It went from "brisk" to no response in 8 months.

** correction to my earlier reply**** my daughters report said primary demyelinating motor and sensory neuropathy. *** sorry misquoted the report :P

My report says sensory motor neuropathy... at the time mine was more sensory.....now I think it is more motor.

I know they bang on me a lot to try to get one. And sometimes they can get them.
However, there is no reflex response in my feet.

Does CMT have reflex responses?
I don't think people with CIDP do.

If I remember correctly from my reading, it is hit and miss, some have reduced responses and some have absent and in some types of CMT there are mixed results.


I find it weird that I only have one reflex that is absent.

Ah, ok.
Thanks for the clarification.

I hope a diagnosis comes for all of us.
You, your daughter, and I..
Cause not knowing I think is the hardest part of all.

After that, well.. at least you have the long awaited answer.