[sheila]

How come the doctors wont tell me what is going to happen to my body when i went to my doctors yesterday after the neuro sent him the results he changed his whole attitude they kept telling me it was anxiatyand deppression which i have but who wouldent now hes telling me they will do everything they can to help me i dont know how many times i have seen this doctor for mucle sprains and i dont even know how they happened im just mad as hell now i cant drive anymore because i cant feel my feet it sucks all my dignity is going out the window im starting to walk funny and have to hold on to things because my balance sucks and to top it off by bladder is starting to spasm and my stomach still blows up like im 6 months pregnany but when i ask them whats going to happen they cant tell me my face is getting worse my eye is messed up i asked him why it was only on one side of my face and neck he said he doesent know i kinda need to know what to exspect he put me on cyclobenzaprine 10 mg and i dident have mucle spasms all night but he said it would help me sleep but it dident my left arm is going out on me can anyone help me the doctors dont want to anser my quastians or give ne any idea of what to exspect by the way i got ne new shoes and they help alot thank you

[echoes long ago]

if your doctor is telling you that anxiety and depression is causing your PN or that you dont have PN when tests show you do then you need a new doctor. If your doctor is telling you that anxiety and depression are making your PN worse, that could be true. They can exacerbate PN symptoms.
If your doctor is telling you that they dont know what is causing your PN or what the future may hold for your PN then they may be telling you the truth. Many people never find out what is causing their PN and no one knows the course that their PN will ultimately run. It can get better, worse, or stay the same at variable rates depending on the individual.

If they are throwing up their hands after a test or two or because a certain test is inconclusive, then you need a new neuro who is an expert in PN.

[diagnonsense]

Hello Sheila-
Firstly I wanted to say I'm really sorry that your neurologist is being so unhelpful when you seem to be progressing so rapidly.
I can't blame you for getting so unhappy.

I'm finding my neuro to be the most unhelpful person on the face of the planet as well.
I wonder if its a neurologist thing to be higly arrogant, and unhelpful?

I hope you start getting some better help, I just wanted to say, you aren't alone in the diagnosing frustration of it all.

[Marty SLC]

I think it's sad that most Nero are JERKS!

[Brian]

I agree with everything echoes said, it is sad that most of the neuro's out there are not very well informed about neuropathy, my first neuro didn't even know how to test for small fibre damage.

[EE03]

If its any consolation, I went to one who had the test results showing my diagnosis and he didn't even address the condition with me. Now I have an appointment to see another neurologist and I'm hoping he's better than the previous one. Find another neurologist and check them out on the patient rating sites. Take care

[daniella]

One of my neuros famous words was I don't know or the tests don't indicate. Anyhow can you go for another opinion? I have seen so many specialists and though I wish I knew the why behind all this I don't so now for me it is about pain control. As far as the anxiety I have gotten that too. I also have RSD and that is a huge thing they say with that. Anyhow my recent pain doc really said it in such a better way. He was working with me about pain meds and treatments like invasive but then also offered alternative. Anyhow with that he suggested a psych and said how key it is to cope and that a person who has been in pain like I have for 2.5 years can't not be effected mentally. He said it so that I did not feel my pain was in my head but that the pain does effect my head which in turn impacts my pain. Hope I am making sense.
What other docs have you seen the the neuro? What bloodwork and tests? I wonder if you have more then one condition going on. By the way my eyes are effected too. Mine is not auto immune but I wonder if you may have something like that going on. With the eyes,weak etc? Hang in there and don't give up hope

[sheila]

Originally Posted by daniella

One of my neuros famous words was I don't know or the tests don't indicate. Anyhow can you go for another opinion? I have seen so many specialists and though I wish I knew the why behind all this I don't so now for me it is about pain control. As far as the anxiety I have gotten that too. I also have RSD and that is a huge thing they say with that. Anyhow my recent pain doc really said it in such a better way. He was working with me about pain meds and treatments like invasive but then also offered alternative. Anyhow with that he suggested a psych and said how key it is to cope and that a person who has been in pain like I have for 2.5 years can't not be effected mentally. He said it so that I did not feel my pain was in my head but that the pain does effect my head which in turn impacts my pain. Hope I am making sense.
What other docs have you seen the the neuro? What bloodwork and tests? I wonder if you have more then one condition going on. By the way my eyes are effected too. Mine is not auto immune but I wonder if you may have something like that going on. With the eyes,weak etc? Hang in there and don't give up hope

i have other posts on here can you please read them and give me your appinion thank you very much its nice to have someone to talk to

[daniella]

I did read your other posts but still did not see what other doctors you have seen or is it just the neuro and gp? I see you have to wait to get the biopsy. Have you had mris? What about complete bloodwork for auto immune like lupus for ex? I think you had stated your b12 was 480 and maybe someone can give input on that. If you have not had mris or complete bloodwork I would get them. The mri of the brain and spine. Sometimes doctors don't know what is going on but you should feel free to ask them to explain test results like the ? you stated on your most recent post. Also getting more opinions. Do you have support like a family member that can go with you? I know you want concrete answers and something to make this better. We all do but it is not often that easy and it can take time for the puzzle pieces to come together. Keep copies of all your records to bring to all your apts,ask questions if you are confused with your results.

[Hope15]

I'm sorry Sheila, for everything that you are having to deal with. So many of us have been there with you. I just cannot understand why some neurologists are the way they are. I have never seen any doctors like them, and I have been to many different types of specialists. My own GP commented on them by saying they were truly a "different breed". Hang in there and don't give up. Don't hesitate to get another opinion anytime.