Originally Posted by Mere

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I am also beginning to wonder if I can ever eat normally again. It hurts bad every time I eat and I am still staying with pureed foods, soups, soft things and sometimes sushi (if I am a good girl). Domperidone is not available in the US so I take Reglan and Donnatal. I have also lost lots of weight, 35 pounds since April. I hate having food and eating become an obsession and a bummer.
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Even though Domperidone is not available in the US, if a US doc gives you a script for it, you can get it through an online canadian pharmacy. I get mine through canada drugs, it has worked wonders for me and has less side effects than Reglan.

I have bith PN and Gastroparesis, and symptoms of both are what landed me in the ER that resulted in a diganosis of T2 Diabetes.
Within 3 months I was in the hospital 6 times for nausea and uncontrolled vomiting. I would wake up in the mornign, roll over and vomit my saliva from my stomache from the night before. IT HURT! Eventually with diet modifications, getting my BS under control, some adjustments to medications and domperidone, symptoms subsided from the gastroparesis. I would recommend avoiding anything that could aggravate your stomach. For me it meant switching from Metformin to Insulin and not using narcotic pain killers wich were prescribed after back surgery shortly before all that happened. I dont know about Tylenol, but avoid Advil as well. Right now I just take Domperidone for stomach as needed and Gabapentin/Cymbalta for my PN. Insulin for the Diabetes. Statin for Cholesterol. Oh yeah, I also take Omeperazol (Prilosec) for the stomach, apparently I have a hiatal hernia and barret's esophogus, probably from all the vomiting. Like I said, I was in Hopsital six times and thought I was going to die, they were talking about feeding tubes and electrical devices being implanted in my stomach. I lost nearly 40 pounts because of malnutrition from the stomach problems. Now, this week, for the first time in a year, I ate popcorn. Hang in there, it can get better. Sending prayers your way.

Originally Posted by Mere

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I am also beginning to wonder if I can ever eat normally again. It hurts bad every time I eat and I am still staying with pureed foods, soups, soft things and sometimes sushi (if I am a good girl). Domperidone is not available in the US so I take Reglan and Donnatal. I have also lost lots of weight, 35 pounds since April. I hate having food and eating become an obsession and a bummer.
QUOTE]

Even though Domperidone is not available in the US, if a US doc gives you a script for it, you can get it through an online canadian pharmacy. I get mine through canada drugs, it has worked wonders for me and has less side effects than Reglan.

I have bith PN and Gastroparesis, and symptoms of both are what landed me in the ER that resulted in a diganosis of T2 Diabetes.
Within 3 months I was in the hospital 6 times for nausea and uncontrolled vomiting. I would wake up in the mornign, roll over and vomit my saliva from my stomache from the night before. IT HURT! Eventually with diet modifications, getting my BS under control, some adjustments to medications and domperidone, symptoms subsided from the gastroparesis. I would recommend avoiding anything that could aggravate your stomach. For me it meant switching from Metformin to Insulin and not using narcotic pain killers wich were prescribed after back surgery shortly before all that happened. I dont know about Tylenol, but avoid Advil as well. Right now I just take Domperidone for stomach as needed and Gabapentin/Cymbalta for my PN. Insulin for the Diabetes. Statin for Cholesterol. Oh yeah, I also take Omeperazol (Prilosec) for the stomach, apparently I have a hiatal hernia and barret's esophogus, probably from all the vomiting. Like I said, I was in Hopsital six times and thought I was going to die, they were talking about feeding tubes and electrical devices being implanted in my stomach. I lost nearly 40 pounts because of malnutrition from the stomach problems. Now, this week, for the first time in a year, I ate popcorn. Hang in there, it can get better. Sending prayers your way.

Originally Posted by Mere

Hello, I am Mere. I suffer with autoimmune spondylarthropathy, FMS and now ideopathic PN with gastroparesis. I was hospitalized for three days when my stomach filled up with food and bile and became, well, hurt.

Alongside these symptoms are tingling in my feet and hands and numbness in my nose, mouth and tongue. The gastroparesis is better and the PN is better but evident after three months. I manage diet carefully which borders on obsession and use medications to propel food through. Although, this is all 'new', I have been hospitalized a couple of times in the past 20 years with unexplained pain and the autonomic, PN symptoms. They did not know what what was happening at the time. So, apparently, it comes and goes.

My GED says the PN and gastroparesis are not related (what?)! My long-time Dr. the Rheumatologist says too much tylenol and verapamil are to blame so I am tapering from tylenol containing substances and have halved the Verapamil.

Can anyone here identify with the GP along with PN?

Hope everone is well.

Mere