Not that they would most likely give a damn, but I wish some neurologists were reading this. So many of us have had bad experiences with them, that it has become a real problem. I just wanted to grab some of the doctors that I have seen, looked them in the eye and yelled, "Why in the hell did you even go into the medical field."???

I can understand a doctors frustration at not finding answers, but this "sorry can't help you" and then toss you to the curb attitude sucks, and it seems so prevalent among them. The first neuro I saw took only a few tests, couldn't find anything wrong and then proceeded to tell me how I would eventually lose my balance. How the heck does he automatically know that???? You don't dump that on a patient like that. I cried for days after that.

Kitt- Nope, I haven't been tested for HNPP.

Thank you everyone for your responses.

Today I decided to call my neurologists office and ask for a referral back to Mayo.
Although there is a wait to get in, at least I feel the people there know about PN, and are experts in all sorts of things, and its the best place for me to be.

>> and while on the phone with the nurse asking for that referral she was talking about the labs that they drew back on the 15th.. she said they came back normal.
DUH. They were normal the first time I had them done as well.

Even if they just want to run a nerve biopsy on me at mayo, at least I feel they are qualified enough to ask for it.
The people here are running around in the dark.

Make sure you have copies of all testing done.
From everybody!
You are entitled to them and can give copies to future docs, or Mayo.
You can glean much from reading and researching the numbers given you
in the test results.
Start a file folder and demand your records, especially if you are
considering switching docs.
You'll know which tests have been done and which ones haven't.
See:
www.lizajane.org
for a complete list of tests for PN and a downloadable form
to follow your results, over time.

Hi

I had a TIA last year, my PCP sent me to a neuro, and warned me that he wasn't the "warmest, fuzziest" guy around. He did the ususal tests in the office, sent me out for EEG & such. When he was testing my legs, I told him I had PN in my feet. He said he couldn't find it. I told him it showed up on the EMG from my Pain doc.

Later, I was telling my PCP about the visit, and called the neuro DR CACTUS. He choked, and almost fell off his chair. With a big question mark on his face. I just said he has a very prickly personality. I know it got back to him, but I haven't!

Hee Hee Hee Hee Hee Hee Hee