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08-05-2009, 02:54 PM
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Junior Member
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my neoro doc after many test says he cant come up with a reason why i have p/n and i accept that but every quastian that i have he doesent anser im in there for 5 minutes and thats it the insurance pays him 350 dollers for that five minutes its so fustrating i asked him why i hurt so much in the cold like when i go to the grocery store and he said he doesent know well it has to be from the p/n because it dident happen before can anyone anser me
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08-05-2009, 04:59 PM
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Senior Member
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Hi sheila, it is because the nerves are damaged and they are sending confused signals to the brain, then of course it can't read them properly given back the wrong sensations, 5 minutes seems far to short of a visit, my neuro spent at least 30 minutes + plus on each visit, is your neuro a neuropathy expert or just a normal neuro ? it can make a huge differance.
good luck |
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| "Thanks for this!" says: | sheila (08-07-2009) |
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08-05-2009, 06:07 PM
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#3 | |||
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I'm with Brian...5 minutes is not enough time for him to evaulate you. Maybe it's time for a new doctor? My neuro spends a lot of time with me. Any doctor that give you no time should be replaced.
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Deb We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right! |
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| "Thanks for this!" says: | sheila (08-07-2009) |
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08-07-2009, 08:23 AM
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Magnate
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Hi. I can relate though I have seen multiple specialities and multiple opinions. Really unless they took my body apart I am diagnosticly tested out. They don't know why I have PN either. In addition though I have RSD which does make my limb feel dead cold and sends the pain very high. I think if you have not had another opinion yet you need one but also what other specialties have you seen? Have you had extensive bloodwork for things like auto immune? Hang in there
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| "Thanks for this!" says: | sheila (08-07-2009) |
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08-07-2009, 08:28 AM
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Senior Member
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You need to see a neuro that is a PN specialist.
One in a teaching hospital neuro dept that does research, or a facility that has a large neuro dept with experts in PN. I go to Johns Hopkins. There are other centers like Jack Miller, The Cornell-Weill Center, Mayo Clinic, etc, that will do this. Most plain neuros will take your money, and are clueless as to proper diagnoses, treatment, & medications.
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Bob B |
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| "Thanks for this!" says: | sheila (08-07-2009) |
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please help
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