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mrsD 05-04-2011 11:27 AM

That is a good idea.

Keep the B12 and Vit D (were you tested? so you know how much to take?) If you don't want the D3 supplement, get some sun each day.

Keep the Lysine (to see if you have viral problems). And the acetyl carnitine (mito damage).
These major ones hit the big areas that are most commonly damaged or having problems.

We also have to understand "high".... the essential fat in flax oil, has to be consumed in some quantity daily. We cannot live without it. So what is "high" exactly in the studies? 5 grams? 10 grams? One capsule of the oil is typically 1 gram with about 40% ALA (alpha linolenic acid) in it. I don't think that is "high" for anyone who has to be eating it and is not typically. So understanding doses is also important.

Nervous 05-04-2011 11:35 AM

Quote:

Originally Posted by mrsD (Post 767535)
That is a good idea.

Keep the B12 and Vit D (were you tested? so you know how much to take?) If you don't want the D3 supplement, get some sun each day.

Keep the Lysine (to see if you have viral problems). And the acetyl carnitine (mito damage).
These major ones hit the big areas that are most commonly damaged or having problems.



My Vitamin D was 48 or 43. I didn't get my B12 tested.

Funny you should mention the Lysine. As soon as I stopped all my supplements (except my multiple vitamin), I woke up with an entirely new foot pain, so I have been adding back 500 mg per day of Lysine. My burning sensation continues to spread, with or without supplements. I don't yet have the kind of pain that some of our members have, but I fear where this is headed.

mrsD 05-04-2011 11:46 AM

So the Vit D you'd need is only about 1000-2000IU daily of D3.

I don't know what to say about the burning. For me it seems linked to what I eat. Some spicy things do it to me. Peppers, potatoes, and some tomato products (but not all). And it took me a long time to find this connection too.! I found a salsa with mangos/peaches without Jalopenas in it and I am fine. If I buy another brand...I can get burning.

I don't have alot of pain either, but I do have some arthritis in my left ankle. I use Salonpas patches on it some days and my strong magnets on it too, because it is very targeted and not general all over discomfort. Weather too really bothers me...long LOW pressures and I can suffer until the Highs come. Like today, I am feeling pretty good, but all last week was a downer.

Nervous 05-04-2011 11:53 AM

I'm pretty baffled by my symptoms. I don't have a good sense of what's going on. Stress is certainly bad for me. And the pain in the bottom of my left foot seems to be always there, to one degree or another. The burning has spread, over the past 10 months, to my lower thighs and arms. I have arthritis in my knees (a longstanding condition, pre-dates my SFN diagnosis). And, of course, I struggle with fatigue. Don't know if the fatigue is brought on by having to cope with the pain symptoms, or if the fatigue is a "stand alone" symptom of the SFN.

Recently, I have increased frequency of urination. That was probably the biggest motivator for tapering off the supplements.

mrsD 05-04-2011 11:59 AM

Well, you would need more urination for clearing the supplements. The B's and C often cause increased urine output and that is normal.

Increased urination, also comes from glucose problems. Diabetes... and fatigue is a huge early symptom too.

What is very alarming is when urination gets LESS... this is reflective of worsening kidney functions.

So it might be a good idea to get a free glucometer and test yourself during the day and night. You might find your answers there. Keep a log to show fasting morning, 1.5 hr after breakfast (keep track of carbs), before and after lunch, after dinner, before bedtime. One Touch is the one I use because the strips are not affected by others sugars you consume or dextrins which are commonly in foods today. The other Glucometers use a different chemical system which may give false highs. One Touch may read high after high Vit C consumption, high aspirin, or gout, but it only measures glucose.

Nervous 05-04-2011 12:11 PM

I will look into that.

However, I am slender and probably below average weight for my height, and have never been told I was anywhere near in danger of diabetes. I don't indulge in a lot of sweets and I am a complex carbohydrates kind of person.

mrsD 05-04-2011 12:14 PM

Alot of thin people are diabetics. Look at Mary Tyler Moore for example...thin all her life!

Not every heavy person gets diabetes either. There are many heavy people who don't have it.

Diabetes is mostly a genetic thing, with autoimmune triggers, and some lifestyle contributions. Very complex...no one rule for everyone.

Nervous 05-04-2011 12:16 PM

Quote:

Originally Posted by mrsD (Post 767549)
So it might be a good idea to get a free glucometer and test yourself during the day and night. You might find your answers there. Keep a log to show fasting morning, 1.5 hr after breakfast (keep track of carbs), before and after lunch, after dinner, before bedtime. One Touch is the one I use because the strips are not affected by others sugars you consume or dextrins which are commonly in foods today. The other Glucometers use a different chemical system which may give false highs. One Touch may read high after high Vit C consumption, high aspirin, or gout, but it only measures glucose.


So, where do I get a "free glucometer"? The drug store? Or have I misunderstood something here?

mrsD 05-04-2011 12:24 PM

One Touch has a free offer. You do have to have an RX to claim the coupon, which they email you.

FreeStyle will send you the free machine without RX, with 10 free strips to get started...but it is the other chemical type, and measures other sugars present besides glucose. You then need an RX to get strips cheaper etc, but you can buy them both, machine and strips without RXs cash in US.

The One Touch ultra mini I have varies in price from 15-19.99 depending on where you go. WalMart and Target tend to be lower.

https://www.onetouchdiabetes.com/offers
This offer took 3 weeks to come for me...which I found was a long wait (right after Xmas).

FreeStyle from Abbott:
http://www.myfreestyle.com/index.html

The deals from Abbott are better...but remember they are competing against One Touch which has some advantages over them.

Both of these mini-meters are inexpensive now. Mine is very easy to use. I got an Rx from my doctor, who is watching me closely and wanted a daily log...which I found very revealing personally! My highest sugars are in the morning fasting...called the "dawn phenomenon".

Kipra 09-05-2011 03:03 PM

Neuropathy Support Foumula
 
Hello,

My husband was diagnosed with Parkinson's Disease in January 2011. He initially started taking azilect, but quit taking the drug due to the long-term side effects. He is now doing a number of things to address the disease, e.g. vegan diet, chi kung, alexander technique, running, etc. A friend has recommended the Neuropathy Support Formula that has been discussed previously on this blog. What do you think?


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