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#1 | |||
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Wisest Elder Ever
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The only pain meds I use are :
Tylenol Aleve... I rotate these to reduce side effects... And tramadol for very bad nights. I do use topical things, like Biofreeze more often. Salonpas patches, and sometimes Lidoderms. If you are very low in B12... 5mg daily would be best for about 3 months, then have another test taken, and if you are high like I am you can reduce. If you are not really low in B12 but just want more, the 1mg should be enough. Be sure to take on an empty stomach, as food messes up the absorption orally. In people with no intrinsic factor, the oral which is about 500 times stronger than food, will be passively absorbed in 1-10% amounts. The RDA for B12 is 2-4 micrograms, when intrinsic factor is working properly. Puritan's just offered methyl B12, so I bought some and took for 3 months before my last test. I typically hover around 800 normally. With 5mg daily I tested out at 1999 (which I believe is the max the test can do).
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#2 | ||
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Junior Member
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Hi Mrs D.,
I just went through my records and found that my B12 is 550(prior to taking any B vitamins), and B1 plasma is 15. With levels like this, is it likely Vitamin B is not the culprit here? And if B is not the culprit, can it still help in healing? Katie |
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#3 | |||
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Wisest Elder Ever
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On my B12 thread, I have a copy and link to Dr. Snow's article.
This research article has changed the way doctors should view B12 issues in people. http://neurotalk.psychcentral.com/post698522-70.html He states in that article that some few people will test out at 400 or close to and still have neuro issues. He recommends taking the B12 anyway for those patients. You know there is a transporter to the CNS that moves B12 from the serum to the brain and spinal cord. That could not be working properly. Also people tend to store B12 in the liver, so if that is overactive it would pull B12 out of the serum making it unavailable to other sites. So there may be factors what exist in some people that just require higher levels. Dr. Snow states that B12 is so inexpensive and benign it is not sensible to withhold it when neurological symptoms are present. I really don't think the sublingual is very efficient. You end up swallowing the dissolved B12 in your saliva. The B12 molecule is huge and not easily passed thru membranes. So most are sublingual...I just chew them and swallow them. But one to avoid is "extended release". There is a new one coming which I expect to be more expensive. If you find this please let us know about it: http://findarticles.com/p/articles/m.../ai_n30959773/ I expected it here by now...
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#4 | ||
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Junior Member
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When my B12 was tested it was about 4 months after the neuropathy had started to turn to pain. In order to stop the neuropathy, i went on ridiculous amounts of antibiotics and remian on them today(oral VS IV now however). They may have prevented the neuropathy from healing if they soaked up the B12 I had. I am going to request another look and will stay on them as Dr. Snow mentions. I have other neuro problems as well so at this point, why not?!
I recently had heavy metals testing done(not sure how reliable the testing is) and I came back high for mercury, lead and gadolidium. The integrative doc I see naturally feels I should chelate (orally not with IV) and of course get all my mercury fillings out ![]() Lastly, I'm preplexed over the neurontin. I understand I should never stop with out counsel from my doc but i doubt he would ever advise it since it's all he's got to offer(plus IVIG). I have such pain in my feet w/out it, I don't know how I could survive. When it's doing it's job, I feel nothing! Bear in mind I am still fighting a ton of other issues from the lyme so the relief is MORE then welcome. However- I HATE HATE HATE being on pain meds like this and know that my body prob can't tolerate going up much higher then I already am-3600. How do people like yourself survive the pain? Or, has your pain loevel decreased to where it's "tolerable?" I know you listed your meds but none of them are real big guns, w/ the exception of the ocassional Tramadol. In additon to the Neurontin Im on 150 of Trileptal and .05 of Ativan for sleep at night. If I were to come off and truly gage the pain(as of right now when I break thru the meds the pain is round the clock with no trigger-it just "is") are these meds the type one could get back on with the same efficacy? Sorry for the long reply! Kate |
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#5 | |||
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Wisest Elder Ever
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My most severe pain was when I was hypothyroid.
I just have that "endurance" personality! I only used pain opiates one day after my 15in long C-section, too. Opiates make me very depressed and sick feeling. I also use high gauss magnets at times. But not every day. http://neurotalk.psychcentral.com/sh...hlight=magnets Magnets work best when placed over the offending nerve before it gets the the spine. I use the graphics mentioned on that thread to help with placement. Same idea as with Lidoderms. I've been using d-ribose, to increase mitochondrial functions and it also helps me sleep better. This then translates to less pain. But remember I have been on many supplements for a decade. This helps too. I believe the Vit D3 has been especially useful. My PN is of the burning type, when active. I control it now by avoiding nightshade veggies and MSG which really trigger it. Biofreeze really helps with burning. Some people have food intolerances which make for more issues. So you may have to do an elimination diet to see if you are triggered by gluten, nightshade, citrus, or dairy.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#6 | ||
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Junior Member
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Interesting! My docs "thought" I had Hoshimoto's because one test showed the antibodies but several done thereafter have been either borderline or w/in range so there's been no treatment. Thyroid issues can cause neuropathy?! I'm learning new things every day on here.
WOW, you are tough!! I have such a high pain tolerence for surgeries(2 csections as well w/ no follow up meds other then motrin), headaches, body aches, etc. but THIS is unlike anything i have experienced. Sometimes I contemplate getting off the meds to see if I could adjust- and then my husband says- WHY would you do that when you can get a couple more months pain free?! And of course, that makes sense too ![]() ![]() ![]() Did you have any thoughts on the metals? |
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#7 | |||
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Wisest Elder Ever
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If you tested high on the metals, I'd do the chelation.
It will remove beneficial things too...like copper and zinc, but most doctors will tell you to take supplements after. Some things naturally chelate: selenium is supposed to help remove mercury (don't go over 200mcg/day for any length of time--- but if you are not getting selenium in you food, 100mcg a day may help) And Alpha lipoic acid too. This is an article about r-lipoic http://www.advance-health.com/rlipoicacid.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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