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#1 | ||
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Elder
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I hope you don't mind me asking some questions to you. You know alot about supplements, and I know next to nothing. My new pain specialist is also a Board Certified Physiatrist, a good thing from what I am reading. I have been put on a host of suppliments for the first time in my life, as I really don't feel well, and she has postponed any surgery, feeling that I am not strong enough in my immune system. I have 4 auto immune problems. I feel weird on these suppliments, and need to know if this is normal, or perhaps why I feel as I do.
The first thing is I am getting headaches. In my life, I can count on one hand how many I have had. Very few, now they are daily. My appetite has increased, I do not need this as my activity level has dropped alot, and my weight is going up. I feel shakey, and somewhat nauseated even if I space these pills out. I am even more tired than ususal, and sleep is more inturrepted. I am under alot more stress as I can't afford these suppliments either. In fact medicare/medicaid won't cover any. I am going to have to sell my home to exist. so I am not sure where all the symtoms are coming from. any information you have, I appreciate. headache is upon me now, and this is weird for me. Every other day B12 shots, 1,000mgs. Fish oil. 3,000-4,000 daily CoQ10 100 mg. daily Tumeric daily B complex daily Alpha Lipoic acid 600 mg. 2 x day thanks for any in put. Stress may be all this is, I don't know. ginnie |
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#2 | |||
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Wisest Elder Ever
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I really don't know.... every other day for the B12 injections?
For how long... a week, 2 weeks, forever? Are they cyanocobalamin? Some people can't handle them that often because of the cyanide in them. Also if you are not converting to methyl active form, the cyano is useless. Tumeric might cause nausea..if you don't take with enough water. What dose of B complex is it? Many people find taking after breakfast is the best for this. It can upset the stomach. The fish oil should be taken with food too. Some people get heartburn from the old alpha lipoic acid... most of us here use the new R-lipoic stabilized, and that only needs 100mg a day. Much easier on the stomach. The old one is not absorbed well unless taken on an empty stomach. I think you should discuss this with your doctor. Starting slowly one at a time, instead of all at once might demonstrate which things are bothering you.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#3 | ||
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Elder
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What is the name of the one that has cynaide in it? Alpha Lipoic Acid? I simply will not take it with poisen as I have already been poisened with DDT. I am sure of this. I will copy your posts and give it to my doctor on tuesday.
I also have very very bad Gerds, Barretts esphagus is being watched carefully for cancer. which one causes nausea? I have enough B12 shots for three months. don't know beyond that time frame. the CoQ 10 is 100 mgs. B complex is timed released put out by Finest Natural. Tumeric is 500 mg. Again, any and all informations i greatly appreciated. will copy your post now. ginnie When given these things, no dangers were presented, possible side effects, or exactly what each one did. I only know I feel real weird, tired, more depressed nauseated, headache. thanks ginnie |
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#4 | ||
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Elder
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looking at bottle of injectable B12. Is this cyanide? Called cyanocobalamin? 1000 mcg/ml
10 mil bottles.why the heck would a poisen be admisistered to a person already poisened with multipal auto immune problems? I don't understand. I had a direct response to DDT poisen from the blueberries in michigan during the 50's. I ate right off the plants proved to be sprayed. Also had epson barr at 9 years old. all kinds of stuff when I was little. She is a board Certified physiatrist. doesn't that mean she knows how the body works with absorption of these vitamins and supplements? very confused ginnie |
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#5 | |||
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Wisest Elder Ever
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Cyanocobalamin is in the B12 shot.
Are you sure about that every other day for 3 months? That is extreme. Usually they are given often say, once a day for 7 days or every other day for 2 weeks, then once a week, or twice a month. Best to have blood work done in between shots to see if they are working. So the frequency is only in the beginning, and does not continue over time. Cyanocobalamin is B12+cyanide ...it is a tiny amount but given so often, it might be hard on some people. Then there are those who cannot activate this synthetic form, and so it doesn't work right. Methylcobalamin oral is much better IMO. OTC 5mg a day on an empty stomach, and no cyanide. I'd clarify why the B12 so often by injection. There is another form for injection called hydroxocobalamin that does not have the cyanide portion. Methyl B12 is available in shots, but typically is made by compounding pharmacies and doesn't come in a multi use vial for self administration.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#6 | ||
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Elder
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I was given three vials, each vial lasts two weeks, so a month and a half ever other day. I go back on tuesday just after two weeks. I will report all, and I am sure glad I asked you. I have not felt right since starting any of it. I wondered if it was all in my head due to stress etc? I also Have SEVERE GERDS and do not want ANYTHING to increase my nausea, and heart burn. I am at risk right now to cancer. I take a double proton pump inhibibtor as it is. Stomach does not feel good, and I don't know if it is hunger sometimes or nausea. heart burn has increased this past two weeks also. I so much want to find a doctor to trust, and that isn't going to give me stuff that makes me worse. Two refills were given to me regarding the B12 injectable, so I do think she meant this as a longer therapy. My nails are peeling off the top, does this have something to do with why she wanted me on this? In general I feel lousy. I will bring all up to her, no question about it. I appreciate you MrsD. I am glad we have NT, to go to, to help us sort through things. thanks again ginnie
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#7 | |||
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Member
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Good luck at the doctor. Hope you start feeling better! Yes, the Cyano B12 is really not needed. Doctors really should know this, but some do not.
I take Methyl. B12. I used to get shots because my level was SO low, then it was fine so I take it sublingually. Works great! I have to be very careful with B6. Too little is bad but too much is bad for the nerves also. I always get tingling that lets me know. It is added to a couple of supplements but I never take it alone.
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#8 | ||
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Elder
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Thank you. I will tell doctor all. what bothers me is that she is a Physiatrist, should she know about cyanide? Can't figure out why she would have an immune compromised patient taking it to begin with. I will get answers. thank you for helping me. I am glad I have this place to come to, and get my worries adressed. ginnie
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