advertisement
Reply
 
Thread Tools Display Modes
Old 03-29-2011, 04:24 AM #1
hunibuni hunibuni is offline
Junior Member
 
Join Date: Mar 2011
Location: scotland
Posts: 7
10 yr Member
hunibuni hunibuni is offline
Junior Member
 
Join Date: Mar 2011
Location: scotland
Posts: 7
10 yr Member
Default information from uk members for peripheral neurological disorder

Hi I am new to the site and am trying to find information on medical treatment from anyone from the uk. I am presently on Pregabalin after trying various other things including gabapentin. The Pregabalin doesnt do much to help and I tolerate it very well. The pains are getting worse which is affecting my wrists and hands even more now and doing simple things like using a knife and fork are becoming difficult at times. I would like to hear from anyone in the uk who has this condition who has been using the same drugs and who can offer advice on any other treatment that has helped.
hunibuni is offline   Reply With QuoteReply With Quote

advertisement
Old 03-29-2011, 05:05 AM #2
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Welcome to NeuroTalk:

The DRUGS you are mentioning do not heal neuropathy. They only mask symptoms. Whatever is causing the problems continues, and escalates and the drugs stop working or people cannot tolerate increasing doses.

I invite you to read our PN forum, and subforum, to see the many causes and interventions that may help you find your trigger, and then treat the CAUSE so your nerves may heal. That is the only long range solution available now.

IVIG which is very expensive is used to combat some autoimmune inflammatory fast progressing neuropathies. It is the only DRUG out there with healing potential.

Pain relievers, anti-seizure meds like pregabalin and gabapentin do not change anything, or heal. They mask symptoms only.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sallysblooms (01-25-2012)
Old 01-24-2012, 10:03 AM #3
hunibuni hunibuni is offline
Junior Member
 
Join Date: Mar 2011
Location: scotland
Posts: 7
10 yr Member
hunibuni hunibuni is offline
Junior Member
 
Join Date: Mar 2011
Location: scotland
Posts: 7
10 yr Member
Default no pain relief

Thankyou for that information. Since I was last on the site I have tried more drugs that have had little effect including morphine for I now have a slipped disk too. The nerve pain is much worse and pain clinics keep changing my medicine which does not help. I have tried duloxetine morphine imipromine and now I am on mirtazapine. I still have chronic pain that is now affecting me in every way including lack of sleep and struggling to cope at work. I have yet another doc appointment as the pain is becoming worse.
I am sick of being put on antidepressants that are supposed to help with chronic pain. My prolapsed disk is not bad enough yet for an operation as I do not have severe enough yet pain!
Quote:
Originally Posted by mrsD View Post
Welcome to NeuroTalk:

The DRUGS you are mentioning do not heal neuropathy. They only mask symptoms. Whatever is causing the problems continues, and escalates and the drugs stop working or people cannot tolerate increasing doses.

I invite you to read our PN forum, and subforum, to see the many causes and interventions that may help you find your trigger, and then treat the CAUSE so your nerves may heal. That is the only long range solution available now.

IVIG which is very expensive is used to combat some autoimmune inflammatory fast progressing neuropathies. It is the only DRUG out there with healing potential.

Pain relievers, anti-seizure meds like pregabalin and gabapentin do not change anything, or heal. They mask symptoms only.
hunibuni is offline   Reply With QuoteReply With Quote
Old 01-25-2012, 12:38 PM #4
Sallysblooms's Avatar
Sallysblooms Sallysblooms is offline
Member
 
Join Date: Jun 2010
Posts: 668
10 yr Member
Sallysblooms Sallysblooms is offline
Member
Sallysblooms's Avatar
 
Join Date: Jun 2010
Posts: 668
10 yr Member
Default

It is good that you found this forum. I agree, drugs do not heal. My doctors do know that, but many do not know what to do since they are often taught in med. school that nerves do not heal.

Getting the right dose and brands of supplements that DO heal and also cutting way back on sugar, exercising for the microcirculation in the smallest of nerves, and staying away from toxins is important.

Antioxidents in food and supplements will help to clean up the toxins and oxidation. Nerves need all of these things to heal.
Sallysblooms is offline   Reply With QuoteReply With Quote
Old 02-05-2012, 11:17 AM #5
hunibuni hunibuni is offline
Junior Member
 
Join Date: Mar 2011
Location: scotland
Posts: 7
10 yr Member
hunibuni hunibuni is offline
Junior Member
 
Join Date: Mar 2011
Location: scotland
Posts: 7
10 yr Member
Thumbs down still no pain relief

Since being on here last I have been withdrawn from morphine and duloxetine and put onto oxy norm then taken off and then triple dose of amytriptaline which did nothing and now they have put me back onto duloxetine and given me paacetamol which has never helped with any kind of pain whatsoever. I am being referred back to pain clinic who said if the immipromine didnt work then I could be referred to a psychologist who deals with different types of pain relief than the doctors do. I suffer from a lot of side effects taking all these drugs and get little pain relief from them and am now suffering side effects of the duloxetine all over again! I feel like I have been shoved from pillar to post between all these docs who sometimes make you feel that its all in your head...if only it was I could switch it all off!
hunibuni is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Hi, am trying to find out information on small fiber peripheral neuropathy alyssasmum New Member Introductions 4 12-15-2010 02:02 AM
The Neurological Approach to Good Health -excellent information lou_lou Parkinson's Disease 0 03-24-2008 02:34 PM
Florida: New resource center in Sarasota will offer information on neurological disor Stitcher Parkinson's Disease 0 01-16-2008 09:31 AM
New resource center in Sarasota will offer information on neurological disorders BobbyB ALS News & Research 0 01-15-2008 09:13 PM
Off topic but needed information for lthe coming cure for neurological diseasestheoui Thelma Community & Forum Feedback 1 10-15-2006 02:15 PM


All times are GMT -5. The time now is 02:15 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.