Do you? Not trying to be a smart*** here; only you know what you're experience has been and what your pain is now.

As with any medication decision, it's about benefit vs. risk. Personally, I think it would at least be worth looking into, and then if you think it worth pursuing, take a copy of the study (and any other documentation/evidence) to your doctor and discuss it.

Doc

That's wonderful to hear! I too was reveling in the improvement--I added 200 mg daily of gabapentin to my 50 mg nortriptyline on August 16 and have had three weeks of low pain. Pain returned last night, so today I'm doing 3 rather than 2 100-mg tabs of gabapentin, and so far that's working pretty well. Who knows what the future will bring, but I'm with you. Let's "saturate ourselves" in whatever miracles we're granted.

I am new to this site so I am sure I must not be looking in the right place but I am DESPERATE for help with BMS. I have suffered for years with BMS and dry eyes (restatsis for years) and only recently have been prescribed gabapentin but I have had NO RELIEF. Tonight is so bad I considered using burn gel in my mouth...the external only warning stopped me but when the pain is this bad I am willing to try anything! The most recent PCP has also prescribed procardia for my hands and feet which is helping but the headache from that medicine is killer.
Is there anyone out there in Pittsburgh, PA who is receiving help from a pcp or dentist?
Thank you and I really appreciate any and all suggestions!

Welcome to NeuroTalk:

Burning mouth can occur with low B12.

Also lipoic acid supplements help some people.

But commonly, toothpaste can be a culprit or mouthwashes.
Check your labels and buy a brand without Triclosan.

These are the 3 most common interventions. Otherwise, it might be a food intolerance or allergy.

I myself cannot tolerate citrus or tomatoes.

I am being treated by a GP, his name is Geno Pavlick with Premier Medical. He is a very caring and intelligent doctor who listens and take over medication when you are getting no where with other doctors. Unfortunately I have no dentist referrals as most know very little about nerve damage. Currently I have taken gabapentin for 2 months with little improvement 600 mg twice a day is where I am, however, much research has indicated tricyclics antidepressants for mouth pain and I just started this week on Nortriptlyine. I will let you know how it goes. I do not have burning mouth, however, I have suffered with ulcers and burning at times and know it is painful. I found milk helped the burning and there are lidocaine mouthwashes they can prescribe. I also take a complex b vitamin and alpha lipoid acid supplement that they coaim helps heal nerves. I understand the desperation as I go thru it daily. I have had two teeth pulled and several root canals. I currently have a tooth hurting that was root canalled. Please update me on your progress. Maybe we can be some sort of support to one another.

Weary, don't forget to take vitamin D. In fact, you might want to ask to get your levels checked. I take D3, B complex and extra B 12 (methyl type)....as well as some other supplements.

My stomach could not take anymore meds.

Check out my previous posts to see what is in my compounded cream. And I also take Trycyclic medication (tablet).

Possible help/but CAUTION

Before I got the RX cream, I found a cream on line called ortho nesic gel that provided a tiny bit of help for short periods of time. BUT these types of creams placed on the face in particular are potentially dangerous, because they can burn or you can get some in your eyes. If you use this or anything like this, use a tiny amount and extreme caution. I also liked a heating pad (not when using any cream!) I also sometimes experimented with a lidocaine cream called LMX. Again, extreme caution is necessary.

Anyway, things aren't perfect for me, but my new routine is better and more manageable and I am grateful. Took a long time to get here. I pray it continues.

Good luck...if you haven't done so already, find yourself a great neuro and get your vitamin levels checked (might need to have a separate doc for this).