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-   -   I can't believe it!!! (https://www.neurotalk.org/multiple-sclerosis/166352-cant-believe.html)

misshayleesmom 03-11-2012 09:45 AM

I can't believe it!!!
 
I have been having trouble for years with my pcp.. he has been on the fence re: MS for years.. yeah i think you have it/ no i don't think you have it..

Well when i seen him in jan about the numbness and pins and needles he was kind of quite during his exam.. he did say my balance was good..but said something was going on..so I made an appt for the ms clinic.

Fast forward to Friday, hubby went to see him ( he's his dr too) he told pcp that i had to go to ER for spasticity, and that ER doc said I was having a severe MS attack, explained that they called the neuro at the ms clinic.. all doc said was "they really called him?" hubby then told him that i'm in a wheelchair now.. doc said "oh I'm so sorry to hear that.." get this... he then said "I always thought she had MS" I feel like wringing his neck!!!

All those years when i tried telling him something was wrong and he just dismissed me..he can't make a decision if his life depended on it!

So I see him on Tues.. hubby is bringing me.. hubby said that he's gonna make sure that he rolls the wheelchair in the mud..lol

There are signs in his office that say.. "only one problem at a time" "No smoking before entering office" " Refrain from wearing cologne/perfume" the list goes on and on..

I'm looking forward to seeing him but i'm so frustrated.. why didn't he listen to me.. i didn't even want to tell him anything was wrong because i didn't want to deal with his attitude.. that is so wrong for a dr to make their patients feel that way..

Sorry for the long post.. had to vent
Cindy

EMPATH64 03-11-2012 10:00 AM

New Here! hello
 
Im suppose to post, I dont know how . help? ty so much

karilann 03-11-2012 10:19 AM

Remain very calm and ask him "If you were not sure I had M.S., why did you not refer me to someone who would be able to find out?"

You can't blame this doc for your M.S., but I would let him know that you will always live with the nagging thought "what would early intervention have done for me?"

I wish you peace with this awful frustration.......:hug:

SallyC 03-11-2012 02:10 PM

Quote:

Originally Posted by EMPATH64 (Post 859963)
Im suppose to post, I dont know how . help? ty so much

You did just fine. Welcome!:hug:

Do you have MS?

SallyC 03-11-2012 02:14 PM

That stinks Cindy. It may not have made any difference whether you knew about your MS sooner or not, but thanks to Dr, ElJerko, you'll never know..:mad:

:hug:

ginnie 03-11-2012 03:11 PM

Hi misshay
 
Sorry that your PCP, was on the fence so long with you. Personnally I would bring it up, and ask why he didn't refer you to someone who could have made a diagnosis. I was in the dark about a condition I had, I was never told. Six years later I found out about it. That didn't sit real well with me. Doctors should explain what they do and why. If they don't know, they need to refer you to those who do. I hope that things go well for you, and that your current physicians take good care of you. ginnie

Kitty 03-11-2012 03:17 PM

Sorry you're having to deal with a less than professional doctor, Cindy. I have little to no faith in the medical field right now so my opinions are probably biased.

I hope you get the chance to at least bring it to his attention that you're aware of what he said to your DH and that you'd like an explanation from him.

Are you still using a wheelchair? I hope this flare-up ends soon. Stress makes it so much worse but how do we avoid it.....especially with the doctors we have to contend with? :rolleyes:

misshayleesmom 03-11-2012 04:11 PM

Quote:

Originally Posted by SallyC (Post 860048)
That stinks Cindy. It may not have made any difference whether you knew about your MS sooner or not, but thanks to Dr, ElJerko, you'll never know..:mad:

:hug:

Lol.. Thanks Sally:)

misshayleesmom 03-11-2012 04:19 PM

Quote:

Originally Posted by Kitty (Post 860079)
Sorry you're having to deal with a less than professional doctor, Cindy. I have little to no faith in the medical field right now so my opinions are probably biased.

I hope you get the chance to at least bring it to his attention that you're aware of what he said to your DH and that you'd like an explanation from him.

Are you still using a wheelchair? I hope this flare-up ends soon. Stress makes it so much worse but how do we avoid it.....especially with the doctors we have to contend with? :rolleyes:

Thanks Kitty,
Yes I'm still in my chair..I'm able to use the walls to walk around but I'm only able to walk a couple of feet.. it is absolutely physically draining.. but I don't have a lot of room in my house..

I probably should use it more often..

Tomorrow will be my first "official" outing with my chair.
I'm going to a Live studio taping of Canada AM along with 30 other fanclub members of Johnny Reid... So I probably will be in front row..eek!! Johnny will be interviewed and he will sing about 4 songs.. he doesn't know i have MS yet as I haven't told him..

I'm a little nervous about the chair though but I know I will be surrounded by all my friends and I get to see Johnny *blushing* lol...

So I will dress in my finest sequined tank and look pretty for the cameras..lol
Really excited about this.. but it's bittersweet.

NurseNancy 03-11-2012 04:42 PM

cindy
i feel so bad for you.
you (and your dh) need another dr. sorry to be so direct but this guy isn't a dr.
when do you see the MS dr? can you find another pcp?

get your records from the ER visit so you can take it to any other dr you see.
if someone can give you a referral it may carry more wt. i don't know how your system works.

have a good time at your outing.
don't give up looking for answers and a good dr. when you find them it will be worth the effort.


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