new here
 

hi I'm new here, relatively new with rsd. interested in what kinds of doctors/specialists and treatments people have had good luck with. thanks.

Welcome Winter7. :Tip-Hat:

Someone will be along to help.

Welcome Winter7

I am sorry you have RSD but glad you found the forum.

You will hopefully get a lot of responses.

People see different doctors based on their symptoms and other issues they may be dealing with.

Many people see:

-pain management specialists
-neurologists

Since RSD can affect nerve, skin, joint, bones and tissue, some people see a rheumatologist. What kind of symptoms are you having?

Treatments are widespread and there is a lot of literature out there about the common treatments. Some are effective for some people, some less effective, some people manage their pain fairly well, some struggle. It is all over the map really.

Check out the treatments tab of this site http://www.rsdhope.org/treatments.html

Here are a just few ...

- Pain medications
- nerve blocks
- physical therapy

I am happy to tell you more but I am sure others have a lot of good info to share.

Best of luck and welcome to the forum...

Welcome Winter 7! I see a pain management specialst for my meds, and lumbar sympathetic blocks. Also, I have done intensive physical therapy, and aquatic therapy in a warm water therapy pool. At home, I take warm epsom salt baths, a heating pad on a low setting, elevation of my affected leg , and have learned "pacing" (balancing activity with equal amounts of rest). Hope this is helpful ~lottie

Welome Winter. I see a pm dr, rheumatologist, neurologist, pyschiatrist (for clinical depression and anxiety), podiatrist, cardiologist and my gp. I take pain meds that my pm dr prescribes to me for rsd and antianxiety and antidepressents from my pyschiatrist to help deal with my rsd pain. I hope that you can find good drs who understand rsd. They are out there. You just have to do a little research on them. RSD Hope and RSDSA have websites with helpful info on rsd and drs. The people here are great too and can help you out alot. Take care my friend. Sincerely, Renee.

I was referred to a pain doctor by my neurologist. It's all awkward for me, I was sent to the neuro for a combination of undiagnosed pain issues and migraines. Finally she referred me to a pain doctor who diagnosed me. My neuro says she doesn't see the point of two doctors trying to treat the same condition because things could get awkward and mixed up (they aren't part of the same clinic so records don't get shared in real time like she's used to) so I only see the pain doc as part of my CRPS management. I got released from my neuro's care yesterday for my migraines. (yay! :cool: ) And I continue to see my GP as needed to manage my other health conditions. I've seen that lots of people here end up with whole teams of doctors and I'm glad that for now I can keep it down to two.

Welcome Winter
 

Is sad to welcome people for this reason but the bet we all can do is giving you some ideas about how to,learn more about rsd, Educations is the key ,educate you ,your dr and family,is many times real challenging to other ,for us is more acceptable but hard to,do it at course because comes with so much changes and also,many things we had to leave aside to just cope with the pain.
The best place so far I found more updated is the rsdsa.org which you can dip easily follow the treatments, general explanation on how rsd work and most important , not being alone, stress is our worse enemy and sure you have somehow able to try to control your stress levels which is real,hard when you are in pain. Hope soon you get the best care you can get and some relief can be your companion soon.
Always talk about it with your family but most openly with your partner ,they suffer many times so much by not being able to help ,but the support is more important and is need it so often.
I wish soon you can tell us how you dr recommended a medical treatment and also make sure you follow the directions , rsd is real complex and hard for us many times to handle .
I wish you the best and send you gentle hugs and lots of love from Jesika .:grouphug::grouphug:

thank you so so much for all of this.
I have some specialists. some dr's have been less than helpful.
I have a lot of pain, flare ups get really bad. neuropathy, numbness, temperature problems. I'm concerned about long term damage if I am not taking care of things properly (like bone/tissue). not sure if there are ways to prevent that damage.

this is very helpful lottie! thank you so much for sharing

thank you Renee for your kind reply! it is very helpful to me.