Ok--here I Go--craziest ? Ever
 

I know many of you will now think I actually am bonkers...but i have seen things that look like others may be experiencing this.
An INTERNAL buzzing feeling?? This is not painful and is not on the surface of the body, rather is inside. Once was in the area of my ovaries...and once was in one of my legs. The ONLY way to describe this "buzzing" is more like an internal vibration...as if one of those small massagers was inside your body (no jokes here please :) ) I have only had it happen twice and it would go on for several hours, intermittently, and then just go away.

Well I had something like that too, from my repetitive strain injury {which evolved into TOS or maybe TOS all along:confused: }
- inside my arm muscles it felt like there was a current, buzzing or vibration running through them. It wasn't painful - just very annoying and kept me from sleeping decently.

My drs looked at me like I was nuts after trying to describe it to each of them.
Plus the fact that it never hurt when they pressed around trying to find sore/tender areas to document.

So anyway- I believe you!!

Nothing new
 

Most of us with neuropathy suffer from that internal/infernal buzzer. The more I do, the more I buzz. My step-mom asked me if I wanted a vibrating pillow to sit on to help with the sitting pain. I had to politely decline. I have a built in one. So to summarize, ....no we don't think you are crazy. Be sure to tell your neuro about this.

Billye

How sad
 

That a friend,aDr. a distant relative ,a stranger, somebody ever ourselves.
Make us think we are crazy,because we feel different..Well what your
feeling many of us are to,you are not crazy,please talk to your Neuro,
tell him-her what you have told us. And keep posting because we care,
and we have been there....:hug: Sue

Belinda...
 

Not crazy at all! I have it all the time. It's exactly as you described.

Belinda - you said one part of it VERY WELL!
 

I usually just say, that while my pain doesn't SHOW....it feels as if I've been scalded with boiling water - INSIDE AND OUT! That usually gets the point across.

It IS like noise! I try to think of it as my nerves screaming....either they are dying and scream in the process, or are hurt and crying OW! BIGTIME!, or protesting as they regrow and ask the brain very LOUDLY: OK WHAT DO I DO NOW????

It's like a high-tension-power-lines humm when you are near them. It's with you all of your waking and conscious life. I'm sort of used to it except on my worser days, but I have to tell you - IF it suddenly went away I sure would wonder if I was still alive!

I hope this all helps - j

HI Belinda!
I asked these great people the same question a few months ago. I was buzzing and didn't know why or what it was all about. Now I've come to recognize when it's happening. Sometimes I hurt when I'm buzzing.....sometimes not.
I'm sorry you are going through all this PN stuff, but I'm glad you found all of us!

Not crazy at all--someone is calling you on your internal cellphone and it's set to vibrate--mine is always set on vibrate!!!!!:p

I also know EXACTLY what you mean, I started 'buzzing a few months back' I first noticed it about 2 hours after taking my first ever 2mg of methylcobalamin. Needless to say I didnt take anymore for a while afterwards because the 'buzzing' kept coming and going for weeks after. Then I started taking the methylcobalamin again about 2 weeks ago as ive heard and been advised that it is the No 1 supplement to take for neuorpathy,im taking 5mg a day,still getting weird bouts of 'buzzing' usually throughout my whole body and also on about 3 occasions when im standing it feels like my feet are on a vibrating matt. But one thing I have to say is that in the past 7 days or so I have noticed a marked reduction in the numbness/altered sensations, not sure if I am just having a 'good' few days or whether the methyl b12 really is helping the symptoms (although it seems to be helping mighty fast,as its ive only been taking them for 2 weeks!!) Also for some strange reason my emotions seem to have calmed right down as well and I feel in a better mood.It may just be the placebo effect I guess.....

Mark,

It sounds likely that your body is being helped; if B12 is helping you it is not just lessening symptoms.

That is a familiar pattern. And many experience fluxuations in symptoms, even temporary worsening of symptoms as the body gets down to real work.

And regarding the buzzing. Some get buzzing as they are worsening, but some of us have had buzzing during both worsening and healing. I had buzzing only during healing.

No guarantees, but it looks good!

rose