My kidneys
 

I have been diagnosed with Chronic kidney disease, stage IV (severe). He said that this condition cannot be reversed, and he was talking about kidney transplants, and dialysis. This is very frightening.

He said make sure that I do not take Advil. BF:hug::hug::hug:

Try to focus on faith in god

Oh friend...I am so sorry that this is an added worry.
I will send you good thoughts.
and hugs
((((((HUGS)))))
bizi

thinking of you,
hugs
bobby

Brokenfriend, I am sorry to read about your kidney disease.

If a kidney transplant is not an option for you, there are two forms of dialysis. One is haemodialysis, which requires regular hospital visits. The other is
Continuous Ambulatory Peritoneal Dialysis (CAPD) which happens at home.

These options might be worth discussing with your doctor.

My father lived for many years when using CAPD after chronic renal failure.

:hug:

Hello, Friend,

Sending prayers. Your doctor will help you.


M

I can't help but thinking is this really happening to me. Why is this happening? What is this? This isn't in the family inherited type of thing. BF:confused:

Friend,:grouphug::grouphug::grouphug:

I understand your questions. But perhaps try to take this one day
and one step at a time.

The doctors will run more tests and such so that they can tell you
what they see/think.



M

I am so sorry that this is happening to you, BF :hug::hug::hug:
I can't imagine how you feel :hug:

I am so angry that they made you wait so long for an appointment to give you this news :mad:

I hope that you can find some comfort in your faith and your bible verses at this time because I'm sure that this news must be very difficult to digest :hug:

I will be thinking of you today... you will be in my prayers :hug::hug::hug:

yes read the psalms and let them comfort you. My Rabbi said they are good for suffering. Feel your faith and don't ask yourself those questions. God is in control. I just know you will be okay.

More hugs for you today....
when is your next appointment?
Again, I am so sorry that you have this new worry.
((((((HUGS)))))
bizi

I saw my councilor Thursday. I see her again in two weeks. I have another doctors appt. at the beginning of the year.

There was a communications break down. I don't remember anyone telling me what kidney disease is. The doctor on Tuesday about wiped me out with to much information that I wasn't prepared to hear, and I was alone at the hospital. BF:hug::hug::hug:

Just read your post, I'm so saddened to know you had to wait so long for your appt and then be told in a rush and while you're on your own so it's so hard to absorb. I hope you can make an appointment with his practice nurse and ask if they could please go over it all again with you so you can be sure you have all the information you need to move forward and manage your life. My heart feels heavy for you, I can well understand how hurt and shocked you are. Sending virtual hugs and support :hug::hug:

Pamela June has a good idea...
maybe there is at least a nurse in the office who can take some time to explain things better to you... they usually have better bed side manners, and tend to be less clinical, anyway.

I'm glad that you are seeing you councilor. Call if you need to see her more often :hug::hug::hug:

Keep talking friend, we are here to listen and provide you
with love and support...
((((((HUGS)))))
bizi:hug::hug::hug:

Friend,

We are here with you. :grouphug::grouphug::grouphug:


M

Thank you everybody. I'm going to try to find a chat group on the computer for people having problems with their kidneys also. My councilor recommended it.

I thank you all for your words of compassion, and sympathy for me. BF :Heart::hug::hug::hug:

Friend,

I hope you find a good group.:hug::hug::hug:


M

I feel so badly b****ing about MY kidney problems…
How is it that I got an appointment in a week, and they left you flapping in the wind so long with such serious issues? :hug::hug::hug:

I hope that you call the office next week and can get some clear information from someone, or another appointment to see the doctor soon :hug:

And I hope that you can find a good forum to get support and more information from other people who have gone through/are going through what you are now :hug::hug::hug:

I don't understand why I have to wait until January 2nd to see this specialist again. I am already worried big time about the possible warning signs of this new illness. BF:grouphug::hug::hug:

I am sorry you have to wait so long.....
(((((HUGS)))))
maybe call to get on a waiting list to be seen sooner?
bizi

I do not understand it either.

I agree with Bizi about asking to be put on a call out list.

You may also want to ask your PCP about seeing a different specialist, or
asking him to call the guy you are seeing now to try to get you in sooner.

It is not right for you to have to wait this long just to be seen when you have such serious kidney problems :hug::hug::hug:

You are in my thoughts and prayers, friend :hug:

My bol told my niece that he's going to have me put into the social services housing. In other words, he's abandoning me some time in the future. I don't know when. I hope that I don't fall between the cracks. Does this happen to other people, or is it only me.

I got the bad news about my kidneys last Tuesday, then I got this news today.

Does the social system have housing for people who need there help anymore?

I don't know what to think. My mind goes blank when I think about it. Then I get scared, and then heart broken. I'm broken again. BF:(

Dear Friend,

I send lots of hugs. :grouphug::grouphug::grouphug:


I don't know what your brother in law thinks.:(


M

Can you believe it. I received some terrible news last week, and I got this bad news today.

This is my home. What's he thinking. He told me this through my niece. I replied to my niece, and they are all probably angry with me on top of everything else. I'm very upset. BF:hug::hug::hug:

Well I can't believe they are doing this to you.
I can only imagine what you are going through.....
I am so sorry that this is happening to you. :(
Will you confront your brother in law?
(((((((((HUGS)))))))))
bizi:grouphug:

BF,

They might not be angry with you.

The BOL is a weird miserable guy.


M

yesterday in my bible class it said everything works out for the good. if it happens and with your condition you would probably be put in a special housing unit that is much better than where you live and you won't be isolated and will make friends. Your brother-in-law will probably go to hell.
take care
bobby

Brokenfriend, sorry that I am a bit late here.

I am very worried that you might not be able to see a kidney specialist until January - that is two months away.

I am not meaning to scare you but kidney failure is progressive. For your own health you need to see a specialist ASAP. Can your doctor help with this?

With care and concern.

:hug::hug:

Friend,

I think you need to see your social worker ASAP regarding the housing situation so you can get some information about the housing options out there. The more information you have, the less you will worry...

Like Kiwi, I am very worried about the length of time between nephrologist appointments. It seems to me that you should be receiving some kind of treatment NOW.
I think it's a good idea to book an appointment with your PCP. Maybe he can explain your condition better, and explain why you are not receiving any treatment at this time. He may not even be aware of the situation.


Please don't worry about hurting anyone else's feelings right now... you have a right to be angry about being sick, and a right to be angry at your brother in law. I think what he is doing is just cruel.
The news you got is a terrible blow at the worst time. My heart really goes out to you :hug::hug::hug:

I don't know what's going on. The emotional issues are bad enough. Now my physical health is going down hill. Then I may lose the place where I'm staying. I didn't do anything to deserve all of this. Why is my brother in law angry? He may be working to much, or he may be doing to much activity. I wish that he would not take it out on me.

My niece said that she is going to talk to him, and said everything is going to work out alright. She is a sweet young lady, and has a fine husband, and two kids. This is giving me a light at the end of the tunnel. BF:hug::hug::hug:

Dear Friend,


The BOL ====>> I have no idea what his issue is.

Keep doing what you can to keep yourself o.k.



M

I'm happy you have such a sweet niece who as given you some hope :hug:

You haven't done anything to deserve this, BF. You are a very good and kind person. Sometimes people just get more than their fair share of s***. I wish that your life was easier... I'm so sorry :hug::hug::hug:

He never has ever liked me, and I don't know why. We were getting closer to each other at one time, but then he started to back away from me for no reason that I'm aware of. BF:hug::hug::hug:

Is he a guy prone to anger? An angry guy? Guy who complains a lot?

They may be monitoring me. I had a laptop set up for me, but I ended up going with the regular base computer. The laptop went back to my bil, and all of my computer contact information was left in it.

I would hate to think that my relatives were eavesdropping on me. That would cause me great sorrow if that were so.

I hope that they deleted my computer information, and didn't keep any of my contact information. BF:hug::hug::hug:

I am sorry friend.
You deserve to be treated better than this.:(
(((((HUGS)))))
bizi

I would hope it would never even occur to them to look at any of your information. It would not to most people :hug::hug::hug:

I use to have allot of energy. Not in the last five years. I thought that it was the medications. One day about four weeks ago, I felt like my old self. I had the get up, and go. I went out to Lowes, and Walmart. When I was leaving Walmart, my knees were hurting me, and I lost most of my energy. I went home.

Sometimes when I'm taking a shower, I have to sit down because I have no energy. Then I get up again when I can get some fresh air. I think that the steam get's to me, and I start coughing sometimes.

I hope that my bil reconsiders what he was thinking of doing. At times like this you need you're family to stand with you, and not reject, and abandon you. He shouldn't reject me for having all of these problems. I can hardly believe this. Is this my bil? Families are families during the good times, and the bad.

This abandonment is a cruel possibility. What if I end up living on the streets. That's a cold, frightful feeling. BF:hug::hug::hug:

Dear Friend,

I hope for good things for you.:grouphug::grouphug::grouphug:


M