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Ooops!
I guess my number of MS boards to frequent has been decreased to 2, NeuroTalk and very rarely MSWorld (hey, I gotta keep posting my weight weekly there!).
I got in trouble pointing out a user on another well known 'crack the whip' MS forum was flat out lying about their history of medications and experiences, and should stop fibbing. Was it worth it? Well, I know a few of us here will know who I'm referring to, because we have been watching the progress of this one, and I finally saw more fibbing and said "enough is enough", flew in with the evidence, and now I'm 'Banned'. Was it worth it? Oh hell yes. Because I'm sure enough people saw it. Not only that, now I get to grill the administration over the integrity of their board and how they seem to feel it's ok to embrace users that flat out lie about their histories to newly diagnosed MS'ers. It's honestly disgusting, but I digress. :D |
Hi
I am sorry that you have had a bad experience elsewhere and we certainly hope NeuroTalk will always be a "user friendly" site. We do request tho' that problems from other forums not be carried over here, and we would also request that if members have issues with other members they discuss these things in PM rather than on the boards. In that light, I am therefore going to respectfully request that any continuation of this topic be taken to PM thanks Cheri |
No problems. Anyone can feel free to contact and you can lock up the thread if you wish :)
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Hey Laura hows the http://i84.photobucket.com/albums/k4...asco_sauce.jpg
how you been? doing well I hope, thought a hijack would help here, and if gaztastic shows up cool, |
Well I messaged you, lol. My mouth's suddenly back to burning in the past 3 days, go figure. NOT SMOKING. Still haven't had a puff or desire to have a puff since quitting.
Anyways... now I have the daunting task of trying to figure out.. is the burning mouth in fact connected to trigeminal neuralgia, and do I have atypical trigeminal neuralgia? My dentist said I had the classic TN... hrm. I just need to find a treatment plan that works. Pain or no pain, I'm going back to work on the 24th. MS isn't going anywhere, Trigeminal Neuralgia isn't going anywhere (least not for now!) and my TMJ (Jaw) is all fired up because I've been chewing gum for the burning mouth! Vicious cycle :D |
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Ha! It should be Habanero instead of just Tabasco! :D Laying on the sauce again, Dimpled One? Hmmm..... I'm thinking you need another set of acronyms. TMJ, TN, MS, NS (non-smoker). |
Congrats on quitting and continuing to quit Laura! :)
Speaking of hot sauce, tonight at our regular Mexican restaurant as I was snorfing down chips and salsa, it was so hot, that not only did my nose run, but my eyes watered too! :yikes: That's late season jalapenos for you! You could use them to fry eggs! Anyway, I'm sorry your burning mouth has returned. Have you tried taking lysine? It completely controls the problem for me. |
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I have not tried that one if it's the one I'm thinking, because it was specifically for cold sores. It may be something to consider. In other news, I got some sweet digital pictures of the insides of my cheeks if my dentist wants them for his 'collection' haha. What I thought was Oral Lichen Planus is definitely not OLP (as confirmed already). I got the French word they suspected (secretary said "leukodem"... to me sounds like leukoderm or leukoderma) but honestly I think it's a build up of keratin (if that's the right word?) from smoking that HOPEFULLY will fade over time. I'm considering trying 2 techniques to see if either works. One involves taking large amounts of beta carotene supplements (which works for Leukoplakia apparently in some cases... although what I have in no way resembles leukoplakia either). Imagine a series of almost completely side by side lines that run from top to bottom of my cheeks like extremely fine wires. It's wild! The dentists all said "Benign" but are still sending me to a specialist in Feb. 09. So I guess we'll find out more then? Unless I can clear these patches up myself through no smoking and beta carotene :) Course... another option is oral lycopene for leukoplakia. Since these seem like treatments that I may be able to read about myself and try myself outside of doing the doctor dance, it's worth a shot either way. Especially in the case of beta carotene. I think the pain is almost 100% related not to mouth lesions etc... but to the TN or ATN idea. Because.. head pain came back, and so did the mouth pain. Pop back a Clonazepam, head pain (burning) subsides, as does the mouth. Go figure. :rolleyes: WALL OF TEXT HITS YOU FOR 10,000 damage!!!! |
Hey laura have you post in the TN forums asking if others get BMS? you may be right
hey Gaz did I see you said you played french horn? I played in band for all my school years. I played trumpet, and could also play french horn, tuba, trombone, sax, clarinet and flute and picciolo recorder or what ever they call it now a days I could play a mulitude of instruments, just didnt follow that direction after schooling hows this for saving your thread ooopsie:hug: |
Six years of French Horn. I played violin, drums, trumpet, and piano too. But the French Horn was and still is my first love. I fell in love with it in the 3d grade and wasn't allowed to play it until 7th grade (when it was free lessons/instrument to use).
I'm still sad because I sold my horn (for far less than it was worth) when I was doing my kitchen years ago and needed money to finish the kitchen. My H told me that I never played the thing and had to get rid of it. But I had pulled it out at least 2-3x a year and oiled it up, polished it, and played it. I loved that horn. :( You're a talented guy, Frank. I never identified with the reed instruments for some reason. But I do love the sax. Last night's symphony concert included a piece that featured the oboe. That's such an odd instrument. Played in marching band, concert band, and orchestra. Sat 1st chair 2nd horn. My band leader had far more confidence in my playing than did I. AVALANCHE OF MUSICAL NOTES HITS YOU for 7,500 damage. |
the oboe is cool sounding, I can still listen to classical and pick out all the different instruments, i learned drums (my Dad)and can pick a geetar didnt do as well with piano i did learn it on my own , probably why i can only pick a geetar the chords messed me up for some reason, Ive always had a good ear for music and notes, i miss it sometimes, occasionally I grab the grandkids harmonica which is my old good one and play on it
heya Laura I thought I heard powered alum was good for cold sores too, do a few lines and you are ready to go:yikes: lol I had read on here someone has used it for cold sores with a lot of success, kjust a thought another reason to sign on search for it and eventually end up rpg ing:rolleyes::eek::rolleyes: |
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Anyway, I hope you get whatever it is under control soon, and that your head pain subsides too. :hug: |
I do get canker sores, but my understanding of cankers was that they are not viral and cold sores are?
Cankers are an imbalance in the mouth? A pharmacist said the cankers are the result of an overgrowth of bacteria? :rolleyes: Beats me. I know they come back to haunt me if I have acidic foods or bite my mouth accidentally, but are gone within 3-5 days generally. ROFL Gaztastic @ avalanche of music notes. Barely a flesh wound! Frank I posted on the TN forum yup.... have not checked yet, came here first! |
Dunno about that. Those 16th notes and the non-flat notes are pretty sharp (ha ha ha..... good pun if I must say so myself). Might not look like a lot of damage until you start bleeding.
Unless, of course, you need to come back here and I'll bite your legs off. I'm invincible, you know. |
Oh look! I've become a Senior Member. I hope I still work the way I used to. Think there's Viagra for Senior Members? :D
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no you get free soup and a funny looking hat, congrats
OK Laura question has anyone one thought about a food reaction or allergy like maybe cornsyrup? for example and do they have pain specialist up in the north atlantic:yikes: |
Congrats Gaztastic! I'm working my way to the Valley of the Depends. My sword is dull from cutting through the thick grasses!
Frank, they definitely have pain specialists here, but like all good Canadian doctors, there are huge waiting lists! :p |
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You already have a worldly tongue, Dimpled One. You don't need more trouble. |
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Ha ha ha! I resemble that remark. :p Speaking of funny hats...we were weren't we? I forgot! Oh yeah, CG is the senior one not me. Canker sores can be caused by a lot of things, stress, too much junk food, and some people just get them when they go hunting every year because they refuse to use chapstick...hmmm wonder who I am talking about...oh that's cold sores! Is that canker sore on the outside? I think I am rambling so I will stop now...gee, think I've had a lot of caffeine today? :eek: |
I'm a Senior but you're an Elderly one. Ha! :p
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:eek:
But I'm younger and can run faster..... :cool: :D |
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:p |
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Now to solve the white hair fine lines that run vertically from top to bottom of my cheeks that are not OLP. I also noticed some yellow or flesh colored bumps around the corners of the inside of my mouth on either side. Teeny tiny things. Like I really need more whacko mouth issues than I'm already dealing with? I'll be honest, the teeny things were lesser when I woke up today, so I almost think they're a drug reaction to Clonazepam (and I can deal with them, they're not painful, and Clonazepam is helpful). They were not there PRE Cloanzepam, and showed up almost instantly after I began Clonaz, so, I'm just going with that explanation for now. Plus the dentist looking around my mouth intently (make that 2 dentists and 4 assistants) didn't say boo about them so. Yeah, there's a party in my mouth and you're all invited! Edit: Cankers be inside the mouth, cold sores be outside the mouth. :) Second Edit: Holy threadjack batman! |
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I saw mouth lesions listed as a side effect on a few sources. I seem to overall tolerate Clonaz well though. I think there can honestly be 10,000 different side effects for drugs.
Carbamazepine caused 'pitch perception' changes in my hearing. I'm not joking. My neurologist had NEVER heard of this with the drug... until he got looking and found case studies of young musically trained children who experienced the same side effect. It is an extremely rare side effect of the drug. His response to all of this? "You should play an instrument". LOL! |
did you inform him you had a choice spot to place a certain instument so that every time he gets popped in the nose he blows a b flat
would say more like crazy eights:yikes: |
Might I suggest that a French Horn is a great instrument (to bring this full circle--or sorecle).
:D |
lol isnt it cool when you can complete the circle
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It's pretty dang satisfying. Almost like getting rid of a mouth full of sores I'd imagine. :eek:
I'm much better at completing a game of Duck, Duck, Goose or Ring around the Rosey. |
LOL you guys are wild.
What if I told you my man isn't French though Gaztastic? |
Ok, RE: my mouth things I noticed.
They're most definitely what's called Fordyce spots. It explains them appearing around the corner of the mouth/lips first... exactly where mine are! Totally benign condition, no treatment necessary. Add that to the list of mouth funsies! Now to figure out the white super fine lines that run vertically. Hrm. |
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:Scratch-Head::ROTFLMAO::ROTFLMAO: I didn't say "French PORN," Dimpled One. :D Quote:
Quit suckin' on the cheesecloth. It'll go away. :rolleyes: |
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ok, went to the "other" spot. signed up, made a hello post, made a single comment on a medication post, and within ten minutes received a letter that my account was suspended because I am a "healthcare professional" wth is that all about? So, it might be just as well that you stay here.
I love NT as my social spot. A nice place to hang out, and kick back. |
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Okay....I've gone through this entire thread and I have to say this is the best "hijacked" thread I've read so far!! :D :p
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Nothing wrong at all with a little hijacking action. :stirthepot:
And with that, I believe it's time to sleep! I was up entirely too early to 'beat the rush' at the blood clinic, only to find I didn't actually beat any rush. The place was PACKED at 7:30am. What?! :Zzzz: |
itz the low jack thats not cool,
I thought it was funny that post by Chem was the second post, she was right quick about it lol, they are watching you Laura, you best behave lol, thats like asking a gazelle not to jump:Doh: We need threads like these GBS general bs just to be able to talk about anything, we have shown culture here, cuisine talk, and talk of Classical Music, and placement of said instruments:eek: we even touch on romance even though he isnt french, and medical, again relating to the classical music, but coming full circle was needed for the good juu juu of the thread, i need coffee i shall return |
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Not much gets past you does it Frank! LOL! And that gazelle jumps a lot! I know these things!! :D |
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